Cystic Fibrosis News Today Weekly Forum Digest

Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed!

New to our forums? Register here.

Evaluating the Quality of Care for CF Patients in the U.S.

Apr 28, 2019 11:37 pm | Cystic Fibrosis News Moderator

Replies: 0
Despite the problems in the U.S. healthcare system overall, Tré LaRosa says that cystic fibrosis care in the U.S. might be better than in the rest of the world. Click here to read Tré’s thoughts on this subject.
Where do you live? How would you rate the healhcare system you have access to?

Finding Your Purpose Outside of the Workplace

Apr 28, 2019 11:36 pm | Cystic Fibrosis News Moderator

Replies: 0
Ella Balasa can’t work full-time — it’s too hard on her lungs and her overall health. As a result, Ella has struggled with feelings of inadqueacy because western culture puts so much emphasis on working life and having a successful career. Click here to find out how Ella has worked through these difficult feelings to find her purpose beyond the workplace.
Can you relate to Ella? Are you able to work? Like Ella, have you struggled to feel valuable and fulfilled outside of your job?

The AbbVie Scholarship Program is Now Accepting Applications

Apr 28, 2019 11:33 pm | Cystic Fibrosis News Moderator

Replies: 0
Students in the United States with cystic fibrosis have the opportunity to apply for up to $25,000 in scholarships under the AbbVie CF Scholarship program for the 2019-2020 academic school year, AbbVie announced. Click here to learn more about the scholarship program and find out how to apply.
This is a great opportunity for students with CF to seek funding for their education. Will you or anyone you know be applying for this scholarship?

Early Antibiotic Treatment to Eliminate MRSA is More Effective Than Waiting

Apr 28, 2019 11:31 pm | Cystic Fibrosis News Moderator

Replies: 0
In people with cystic fibrosis, using antibiotics to fully eliminate new MRSA infections seems more effective than waiting for the infection to pass naturally, a study says. Learn more about this study and its findings here.
Have you ever experienced MRSA? How did you treat it?

Nebulizers & Kits

Apr 26, 2019 03:02 am | Tré LaRosa

Replies: 0
For treatments, we use nebulizers to vaporize medications in our nebulizer kits.

What brand of nebulizer do you use?
What kits?
What medications do you nebulize?

Sanitizing your neb kits

Apr 26, 2019 02:47 am | Tré LaRosa

Replies: 0

How often do you sanitize your neb kits?
What is your protocol for sanitizing your neb kits?
How were you instructed to, if you were ever taught?
What type of neb kits do you use?

Hospital food, for adults

Apr 24, 2019 10:11 am | Tré LaRosa

Replies: 0
For people with CF, it’s important we’re eating consistently to ensure we’re at the right weight. When we’re in the midst of an exacerbation, that becomes even truer.

How is the hospital food at your clinic? What’s your fav?
What type of food do you wish your clinic had?
Does your hospital take requests?
Are you able to get food from outside the hospital?

Let’s Talk About Sleep and CF

Apr 23, 2019 11:50 pm | Cystic Fibrosis News Moderator

Replies: 0
In her latest column, Elly Aylwin-Foster stresses the importance of rest and expresses frustration that sleeplessness as it relates to cystic fibrosis isn’t researched more. Click here to read more from Elly.
Do you have trouble sleeping? Why do you think that is? Do you agree with Elly that this topic warrants more research?

New Test Could Help Pinpoint Effective CF Modulators

Apr 23, 2019 11:49 pm | Cystic Fibrosis News Moderator

Replies: 0
A new test may help pinpoint which CFTR modulators are more effective for treating individual patients with cystic fibrosis (CF) a pilot study indicates. Click here to read more about this study.
What are your thoughts about this study and its findings?

Kalydeco Use In Utero Could Slow CF Progression, Animal Study Finds

Apr 23, 2019 11:48 pm | Cystic Fibrosis News Moderator

Replies: 0
An animal model of cystic fibrosis treated with Kalydeco in utero and after birth showed that early treatment could help slow CF progression. Read more about it.
What do you think of this news?