Cystic Fibrosis News Today Weekly Forum Digest

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New CF Treatment Candidate AP-PA02 Targets P. Aeruginosa Infections

Sep 24, 2019 03:35 am | Cystic Fibrosis News Moderator

Replies: 0
Armata Pharmaceuticals’ new treatment candidate AP-PA02 targets P. aeruginosa infections in patients with cystic fibrosis. Read more about it here.
What do you think of this news?

Reflecting on the First Year of My Column, ‘Mutations & Conversations’

Sep 24, 2019 03:33 am | Cystic Fibrosis News Moderator

Replies: 0
A year after launching his column, “Mutations & Conversations”, Tré LaRosa takes time to stop and reflect on the many opportunities the column has created for him. Click here to read more from Tré.
Are you one of Tre’s regular readers? Do you have a favorite column of his? What are some topics you hope he will write about in the future?

Migraines

Sep 23, 2019 06:25 am | Luisa Palazola

Replies: 0
I’ve been dealing with pretty gnarly migraines over the last few weeks. I’m no stranger to migraines, in fact when I was 16, I was admitted because of getting migraines. That admission, I also had an MRI of my head — and, it turns out I have a birth abnormality called Arnold Chiari Malformation — type 1.5 to be exact. It’s the when the
“lower part of the cerebellum — but not the brain stem — extends into an opening at the base of the skull”
I don’t think it was a major concern to my team, but I was referred to a neurosurgeon and neurologist. The surgeon didn’t think it would cause me any problems in the forseeable future, but surgery could be needed as I get older — I think to relieve the pressure. And, my migraines were handled with a prescription for Keppra (an anti convulsant) for long term management, and sumatriptan for immediate relief.
Anyways, because I’ve been having headaches again — my lil skull malformation has been lingering in my mind. I feel like the headaches associated with a chiari malformation are pretty brutal — and, right now I’m an annoyed and nauseated. So, I think it’s just time to see a neurologist and figure out a game plan and perhaps up my dose of Keppra. Part of me is inclined to look into hypnosis as well.

BreatheCon CFF

Sep 20, 2019 06:56 am | Luisa Palazola

Replies: 0
Head’s up! The CFF hosts an annual virtual event for people with CF for a “weekend of sharing, connecting, and learning as we join together for a free, two-day virtual event to discuss experiences unique to people living with CF.” This year it it is Sept. 20 and 21. Sign up below!
https://www.cff.org/Get-Involved/Attend-an-Event/Virtual-Events/BreatheCon-2019/