Topics in the CF News Today Forum That You Might Have Missed

Cystic Fibrosis News Today Weekly Forum Digest Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed! New to our forums? Register here.   Dealing with CF in public places Oct 30, 2019 08:26 am | Jenny Livingston Replies: 0 I’m traveling today and as I’ve worked my way through the airport, I’ve noticed several strange looks in my direction. From people staring at my mask, to the man who intently watched me take enzymes with a snack, to the woman sitting nearby who just gave me a horrified side-eye as I spit sputum into a tissue. Sometimes I forget that these things aren’t normal to everyone! Do you have any funny “CF in public” stories?  Read More Orkambi Benefits CF Patients But Risks Evident in Those Who Can’t Tolerate It, French Study Finds Oct 30, 2019 05:24 am | Cystic Fibrosis News Moderator Replies: 0 A study of Orkambi’s use in 845 CF patients found definite lung and weight benefits among those who could use Orkambi, but that 18% had to stop treatment. Read more about this study here. What do you think of this trial and its findings? Read More Not Helping Is a Form of Self-care Oct 30, 2019 05:22 am | Cystic Fibrosis News Moderator Replies: 0 To beat survivor’s guilt, columnist Brad Dell helps as many people as he can. However, he’s starting to realize that saying no is a valid form of self-care. Click here to read more from Brad. Do you ever felt this kind of guilt? If so, why do you think it happens? And how do you manage it? What do you do to deal with it? Read More Recent Posts What will life look like on Trikafta? Regular Exercise by CF Patients May Promote Lung Health by Lowering Adiponectin Levels Anxiety in children of parents with CF CF Does Define Me in Some Ways…. And That’s Okay When compliance becomes more difficult