Linda S. Franck, Monica McLemore, & Shanell Williams
Dr. Linda S. Franck holds the Jack and Elaine Koehn Endowed Chair in Pediatric Nursing at the University of California, San Francisco (UCSF) School of Nursing and is the Director of Postnatal Research for the UCSF California Preterm Birth Initiative. Dr. Franck has extensive clinical and research experience in maternal, newborn, child and adolescent health care. Her research focuses on in improving the patient and family experience of health care and she has pioneered interventions to engage parents and children as partners in research to improve quality of care and quality of life.
Monica McLemore is an assistant professor in the Family Health Care Nursing Department, an affiliated scientist with Advancing New Standards in Reproductive Health, and a member of the Bixby Center for Global Reproductive Health at the University California San Francisco. She maintains clinical practice as a public health and staff nurse at Zuckerberg San Francisco General. Her program of research is focused on understanding reproductive health, rights, and justice.
Shanell Williams is the Director of Community Engagement and Partnerships for the California Preterm Birth Initiative at University California San Francisco and a member of the Board of Trustees at City College of San Francisco. Over the past 20 years, Shanell has served thousands of San Franciscans as an informed, passionate and dedicated public advocate, nonprofit leader and community organizer. She has worked with numerous nonprofit agencies and labor organizations dedicated to serving marginalized, low-income communities.
Monica McLemore is an assistant professor in the Family Health Care Nursing Department, an affiliated scientist with Advancing New Standards in Reproductive Health, and a member of the Bixby Center for Global Reproductive Health at the University California San Francisco. She maintains clinical practice as a public health and staff nurse at Zuckerberg San Francisco General. Her program of research is focused on understanding reproductive health, rights, and justice.
Shanell Williams is the Director of Community Engagement and Partnerships for the California Preterm Birth Initiative at University California San Francisco and a member of the Board of Trustees at City College of San Francisco. Over the past 20 years, Shanell has served thousands of San Franciscans as an informed, passionate and dedicated public advocate, nonprofit leader and community organizer. She has worked with numerous nonprofit agencies and labor organizations dedicated to serving marginalized, low-income communities.
Working in partnership with communities: listening to women’s lived experiences to help set research priorities to address the preterm birth epidemic
Health research had traditionally been led by the medical community without input from communities impacted by the conditions studied, but efforts to include the perspectives of these communities have begun to influence how future research is planned. A new paper in BMC Pregnancy and Childbirth presents research questions prioritized by women affected by preterm birth. In this blog post, the authors, including both healthcare professionals and community representatives, discuss how they have made their research and funding processes more inclusive of previously unrepresented voices.
Women with lived experience vote on the prioritization of research questions at a focus group facilitated by the UCSF California Preterm Birth Initiative. credit: authors
If you and your community were impacted by a serious health condition, would you want to have a say in local and national research priorities?
“Nothing About Us Without Us!” is a slogan that has become a rallying cry for community partnership in all public services and policy setting. For our team at UCSF California Preterm Birth Initiative (PTBi-CA), the saying could easily describe what we consider to be the best approach to research for improving birth outcomes in the United States.
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