Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Modulating Reality: My Miracle CF Med Was All Hype Synspira’s CF Therapy Candidate SNSP113 Granted Orphan Drug Status in EU Does Having CF Affect a Career Negatively or Positively? Streptococcus, Haemophilus Bacteria Dominate Airways of CF Babies for First 2 Years, Study Says Modulating Reality: My Miracle CF Med Was All Hype Apr 12, 2019 09:00 am | Elizabeth Rogers I’ve spent most of my life hearing that the cure for cystic fibrosis is just around the corner. Just wait a few more years, they keep saying, and it’s going to be right there. Then a few years passed, and a few more, and the cure seemed just as far away as ever. My first […] The post Modulating Reality: My Miracle CF Med Was All Hype appeared first on Cystic Fibrosis News Today. Read More Synspira’s CF Therapy Candidate SNSP113 Granted Orphan Drug Status in EU Apr 12, 2019 07:00 am | Vijaya Iyer Synspira Therapeutics’s candidate for treating cystic fibrosis, SNSP113, has received orphan drug designation from the European Medicines’ Agency (EMA) in the European Union. The status was granted by the EMA’s Committee for Orphan Medicinal Products (COMP), which reviews experimental treatments developed for rare diseases. Thick mucus accumulates in the lungs of cystic fibrosis (CF) patients, making it […] The post Synspira’s CF Therapy Candidate SNSP113 Granted Orphan Drug Status in EUappeared first on Cystic Fibrosis News Today. Read More Does Having CF Affect a Career Negatively or Positively? Apr 11, 2019 09:00 am | Elly Aylwin-Foster I’ve written recently about getting more feedback and input from the CF community for this column. I love sharing my journey with you, but I’m only one person. Through this column, it’s my ambition to start some big conversations on the impact the CF community is making professionally and to address the barriers that make […] The post Does Having CF Affect a Career Negatively or Positively? appeared first on Cystic Fibrosis News Today. Read More Streptococcus, Haemophilus Bacteria Dominate Airways of CF Babies for First 2 Years, Study Says Apr 11, 2019 07:00 am | Ana Pena Bacteria species of the genus Streptococcus and Haemophilus are the most common in airways of children with cystic fibrosis (CF) for their first two years of life, a study reveals. The data suggest these bacteria may play an important role in the early progression of CF, but its clinical significance is still unknown. The bacteria may help prevent […] The post Streptococcus, Haemophilus Bacteria Dominate Airways of CF Babies for First 2 Years, Study Says appeared first on Cystic Fibrosis News Today. Read More   Recent News CF Patients Infected with CMV May Have Faster Disease Progression, Study Finds Why I Shout My Story Large Sugar Molecule Disrupts B. cepacia Bacteria from CF Patients, Study Shows Feeling Bad for Myself Is Part of Healing Choline Supplementation Improves Lung Function, Liver Health in CF Patients, Study Shows