viernes, 5 de abril de 2019

Cystic Fibrosis News Today Weekly Digest


Cystic Fibrosis Weekly Update

Contents:

Mucus and Inflammation, Rather Than Infections, are Early Drivers of Lung Disease in CF, Study Says

Apr 05, 2019 07:00 am | Ana Pena



mucus and inflammationEarly accumulation of abnormally thick mucus and inflammation in the lungs, rather than bacterial infections, may be the initial trigger of lung disease during cystic fibrosis (CF), a new study suggests. Bacterial infections have been thought of as an early driver of CF disease, but mucus build-up and inflammation of the airways is already evident […]
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3 Ways Fear and Anxiety Shaped How I Cope

Apr 04, 2019 03:00 pm | Luisa Palazola



pediatric CF copingGrowing up with a chronic illness like cystic fibrosis has always bordered on terrifying, which is something I hadn’t quite come to terms with until recently. How does a kid respond to concepts of mortality and suffering, anyway? Parents of kids with CF often try to shield their children from these realities as best as […]
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Dealing with Expectations at Work with an Invisible Illness

Apr 04, 2019 09:00 am | Elly Aylwin-Foster



expectationsMy column focuses on working life and professional ambitions for people with cystic fibrosis. I write it for two reasons. The first is to speak to carers, parents, and young people growing up with CF on the spectrum of a hopeful future that is emerging for our community. This is not everyone’s reality with CF […]
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Resura, First Prenatal Non-Invasive Test for Single-Gene Diseases Like CF, Launched by Progenity

Apr 04, 2019 07:00 am | Ana Pena



prenatal testResura Prenatal Test, the first non-invasive prenatal test for single-gene (monogenic) disorders such as cystic fibrosis (CF), has been launched by  biotech company Progenity. The test screens fetal cell-free DNA from a sample of maternal blood. According to the company, this test is the first of its kind, combining non-invasive testing and the ability to […]
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