Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Can We Take a Minute to Rest? New Test Could Lead to Effectively Customizing Treatments for CF Patients, Study Contends How I’ve Found Purpose Without Having a Full-time Job Can We Take a Minute to Rest? Apr 18, 2019 09:00 am | Elly Aylwin-Foster Reader, I am tired. I don’t need to explain how that feels to those who have cystic fibrosis (CF), but for the benefit of others, I will. It’s a kind of tiredness that halves my normal walking pace. It leaves me reaching for words mid-sentence in confusion and automatically makes me stand hunched over — […] The post Can We Take a Minute to Rest? appeared first on Cystic Fibrosis News Today. Read More New Test Could Lead to Effectively Customizing Treatments for CF Patients, Study Contends Apr 18, 2019 07:00 am | Ana Pena A simple new test may help identify which CFTR modulators are more effective for treating individual patients with cystic fibrosis (CF), early results from a pilot study show. The test finds which compounds are more effective in restoring the beating of patient-derived airway cilia, which are hair-like structures that line the human airways and whose movement is […] The post New Test Could Lead to Effectively Customizing Treatments for CF Patients, Study Contends appeared first on Cystic Fibrosis News Today. Read More How I’ve Found Purpose Without Having a Full-time Job Apr 17, 2019 03:00 pm | Ella Balasa Our society places great emphasis on success through careers. Whenever we meet a stranger, one of the first questions we ask is, “What do you do?” I feel this pressure despite my awareness that my illness makes it difficult even to predict what the next few months might bring. The other day, I took part in […] The post How I’ve Found Purpose Without Having a Full-time Job appeared first on Cystic Fibrosis News Today. Read More   Recent News CF ‘Mom Guilt’ Is Hard, but My Best Is Good Enough Starting Kalydeco Treatment Before Birth May Help Halt CF Progression Post-Birth, Animal Study Suggests Early Antibiotic Treatment Better to Eradicate New MRSA Infections in CF Patients, Study Suggests My Personal Paradox Sets the Bar Higher and Higher Incidence of Liver Disease and Cirrhosis Climbing in CF Patients, UK Registry Study Says