Data sharing [NEW TOPIC PAGE]

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Last Posted: Apr 11, 2019

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• A Review of the Challenges of Using Biomedical Big Data for Economic Evaluations of Precision Medicine.
  Fahr Patrick et al. Applied health economics and health policy 2019 Apr
• Genomic Common Data Model for Seamless Interoperation of Biomedical Data in Clinical Practice: Retrospective Study.
  Shin Seo Jeong et al. Journal of medical Internet research 2019 Mar 21(3) e13249
• Clinical exome sequencing in 509 Middle Eastern families with suspected Mendelian diseases: The Qatari experience.
  Al-Dewik Nader et al. American journal of medical genetics. Part A 2019 Mar
• Gathering data for decisions: best practice use of primary care electronic records for research.
  Canaway Rachel et al. The Medical journal of Australia 2019 Apr 210 Suppl 6S12-S16
• Responsible data sharing in international health research: a systematic review of principles and norms.
  Kalkman Shona et al. BMC medical ethics 2019 Mar 20(1) 21
• Protecting Genomic Data Privacy with Probabilistic Modeling.
  Simmons Sean et al. Pacific Symposium on Biocomputing. Pacific Symposium on Biocomputing 2019 24403-414
• Challenges and Opportunities for Using Big Health Care Data to Advance Medical Science and Public Health.
  Shortreed Susan M et al. American journal of epidemiology 2019 Mar
• Communal data work: Data sharing and re-use in clinical genetics.
  Vassilakopoulou Polyxeni et al. Health informatics journal 2019 Mar 1460458219833117
• Merging heterogeneous clinical data to enable knowledge discovery.
  Seneviratne Martin G et al. Pacific Symposium on Biocomputing. Pacific Symposium on Biocomputing 2019 24439-443
• National Rare Diseases Registry System of China and Related Cohort Studies: Vision and Roadmap.
  Feng Shi et al. Human gene therapy 2018 29(2) 128-135

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