Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Finding My CF Community Has Restored My Sense of Belonging FDA Grants Orphan Drug Status to AR-501, Potential CF Treatment for Chronic Lung Infections Finding My CF Community Has Restored My Sense of Belonging Jul 01, 2019 09:00 am | Tré LaRosa Growing up, I was insulated from the wider cystic fibrosis (CF) community. Since I had a sibling with CF, I didn’t feel the need to meet other kids with CF. My sister Alyssa and I had an amazing bond in which CF was a part of our lives. It allowed us to understand each other […] The post Finding My CF Community Has Restored My Sense of Belonging appeared first on Cystic Fibrosis News Today. Read More FDA Grants Orphan Drug Status to AR-501, Potential CF Treatment for Chronic Lung Infections Jul 01, 2019 07:00 am | Ana Pena AR-501, an investigational inhaled formulation of gallium citrate to treat chronic lung infections in patients with cystic fibrosis (CF), has been granted orphan drug status by the U.S. Food and Drug Administration (FDA). The treatment, developed by Aridis Pharmaceuticals, is designed to be given once weekly and is self-administered within minutes, allowing a direct delivery […] The post FDA Grants Orphan Drug Status to AR-501, Potential CF Treatment for Chronic Lung Infections appeared first on Cystic Fibrosis News Today. Read More   Recent News Children’s Book ‘Our Baby has Sixty-Five Roses’ Launched by CF Parent From Boom to Bust: Managing Work with CF Ultrasound Can Help Detect Liver Disease in Kids with CF, Study Says Soul Sisters: My Reflections on Mallory Smith’s Memoir Better Access to Relizorb for Patients on Feeding Tubes Advocated by Doctors and Dietitians