Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: AzurRx BioPharma Launches Phase 2 Trial Testing MS1819-SD Combined With PERT for EPI Medicine Is Splitting Me into Pieces Why Rare Disease Communities Must Stand United Modified and More Rigorous Cleansing Procedure May Better Prepare CF Patients for Colonoscopy, Study Says AzurRx BioPharma Launches Phase 2 Trial Testing MS1819-SD Combined With PERT for EPI Jul 10, 2019 07:00 am | Marisa Wexler AzurRx BioPharma has initiated a Phase 2 clinical trial testing its oral capsule MS1819-SD, combined with standard porcine pancreatic enzyme replacement therapy (PERT), in people with cystic fibrosis (CF) who have exocrine pancreatic insufficiency (EPI). PERT is the standard of care for EPI associated with CF or chronic pancreatitis. It was designed to adequately replace […] The post AzurRx BioPharma Launches Phase 2 Trial Testing MS1819-SD Combined With PERT for EPI appeared first on Cystic Fibrosis News Today. Read More Medicine Is Splitting Me into Pieces Jul 09, 2019 03:00 pm | Bailey Vincent I am not a whole and complete person. All you have to do is look at my medical chart to know that this is a fact. I have a different doctor for every part of me. I am not an “I” or a “me” — I am the parts of my sum. Don’t get me […] The post Medicine Is Splitting Me into Pieces appeared first on Cystic Fibrosis News Today. Read More Why Rare Disease Communities Must Stand United Jul 09, 2019 09:00 am | Brad Dell “You need space at the table for five wheelchairs?”  The waitress’s eyes exploded from her skull, shocked to the degree I’d expect if I were to ask that she seat five grizzly bears. When making the reservation at the restaurant, I said it’d be a work party involving people with various disabilities. I guess I […] The post Why Rare Disease Communities Must Stand United appeared first on Cystic Fibrosis News Today. Read More Modified and More Rigorous Cleansing Procedure May Better Prepare CF Patients for Colonoscopy, Study Says Jul 09, 2019 07:00 am | Joana Carvalho People with cystic fibrosis (CF) may require a modified and more rigorous cleansing procedure to prepare their bowels for a colonoscopy screening procedure that allows good visualization, a study reports. Findings of the study, “A non-randomised single centre cohort study, comparing standard and modified bowel preparations, in adults with cystic fibrosis requiring colonoscopy,” were published in the […] The post Modified and More Rigorous Cleansing Procedure May Better Prepare CF Patients for Colonoscopy, Study Says appeared first on Cystic Fibrosis News Today. Read More   Recent News Is it Ethical to Have Another Child Once You’ve Had One with CF? IMPACT-breath Study Explores Non-invasive Diagnosis of Pseudomonas Aeruginosa Lung Infections in CF Patients World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients Adding CF-specific Variables More Accurately Prioritizes Patients on Lung Transplant Waitlist, Study Says I Need Help Asking for Help