Cystic Fibrosis Weekly Update

Contents:

An Open Apology to the Guy Who Married the Sick Girl

Jul 16, 2019 03:00 pm | Bailey Vincent

This is an apology you don’t know I’m writing. The first thing I texted you today was “Nope.” It was in reply to what you texted me at 9:07 a.m.: “Have you seen an ENT yet?” You were gone before I opened my eyes, as our schedule so often trends, you began work on the […]
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We Don’t Get Used to Disease, So We Still Need Your Support

Jul 16, 2019 09:00 am | Brad Dell

Bradley was a dramatic kid. I’d sit up in bed at night, unable to lie down because it made me cough, and wonder whether Prometheus ever became used to having his liver pecked out each day. I concluded it wouldn’t be much of a curse if he got used to the pain. This brought to […]
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NIH $2.3M Grant to Help Develop Nanoparticle Therapy for Muscle- and Weight-wasting Disorder

Jul 16, 2019 07:00 am | Joana Carvalho

Oleh Taratula, PhD, a researcher at Oregon State University‘s College of Pharmacy, has been awarded a $2.3 million five-year grant to support a research project into a muscle-wasting disorder called cachexia that can affect people with chronic diseases that range from cancer to cystic fibrosis, multiple sclerosis, Crohn’s, and rheumatoid arthritis. Taratula is planning to use the National Institutes of […]
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