Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: ‘Everything’ Will Never Be Perfect, and That’s OK Kalydeco’s Safety and Benefits Studied in CF Patients with Severe Lung Disease ‘Everything’ Will Never Be Perfect, and That’s OK Jul 22, 2019 09:00 am | Tré LaRosa I’ve always been able to eat whatever I wanted. That’s just a part of growing up with CF. Kids are picky eaters to begin with, but when you combine the inability to gain weight with pickiness, it results in headaches and frustration. So, when I was a kid, our doctors just told my parents that […] The post ‘Everything’ Will Never Be Perfect, and That’s OK appeared first on Cystic Fibrosis News Today. Read More Kalydeco’s Safety and Benefits Studied in CF Patients with Severe Lung Disease Jul 22, 2019 07:00 am | Patricia Inacio, PhD Treatment with Kalydeco (ivacaftor) improved lung function, exercise capacity, and sweat chloride concentration in cystic fibrosis (CF) patients with severe lung disease, a small retrospective analysis shows. The study, “Effectiveness of ivacaftor in severe cystic fibrosis patients and non‐G551D gating mutations,” was published in the journal Pediatric Pulmonology. Mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene — […] The post Kalydeco’s Safety and Benefits Studied in CF Patients with Severe Lung Diseaseappeared first on Cystic Fibrosis News Today. Read More   Recent News NIH $150,000 Grant to Support Research into Preserving Fertility in Women Prior to Lung Transplant How Much CF Do You Choose to Show? European Initiative Targets Diagnosis, Treatment of Rare Diseases Pancreas-on-a-chip Expected to Shed Light, Help Find New Treatments for CF-related Diabetes Pregnancy in CF Women With Poor Lung Function Not Linked to Pulmonary Decline, Study Shows