Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients Jul 04, 2019 07:00 am | Hal Foster It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in their native North Macedonia diagnosed his kidney, vision, and hearing problems as Alport syndrome. Although she had known for years that something was wrong, the news that David would battle a lifelong rare disease devastated the single mother of three, plunging […] The post World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patientsappeared first on Cystic Fibrosis News Today. Read More   Recent News Adding CF-specific Variables More Accurately Prioritizes Patients on Lung Transplant Waitlist, Study Says I Need Help Asking for Help BillionToOne Announces Launch of UNITY Prenatal Screen Finding My CF Community Has Restored My Sense of Belonging FDA Grants Orphan Drug Status to AR-501, Potential CF Treatment for Chronic Lung Infections