Cystic Fibrosis News Today Weekly Forum Digest

Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed!

New to our forums? Register here.

CBD and Drug Interactions

Jul 22, 2019 09:50 am | Luisa Palazola

Replies: 0
In the US, CBD products have been booming (not to be confused with THC, which is the high inducing substance). The legality around the substances is confusing, but the reality is that there is CBD products everywhere. Which, in my perspective, is awesome considering the medicinal benefits of CBD. But, I think it’s extremely important to heed caution, especially if you are on a CFTR modulator, as CBD may affect absorption of certain medications in the body. I came across this article that states “CBD is similar to grapefruit in that it also binds with those enzymes, but research suggests that it’s possibly even more potent because it binds in multiple parts of the gut and liver.” I note this because those who are on CFTR modulators are told not to eat grapefruit, as it can interfere with the absorption of the modulator, and if CBD does indeed mimic this interaction, it’s good to keep in mind

I am not totally sure of the validity of this article, but I think it’s worth noting and investigating. If y’all have anymore information, please let me know.

https://www.forbes.com/sites/daviddisalvo/2019/06/30/what-cbd-and-grapefruit-have-in-common-when-it-comes-to-drug-interactions-risks-you-should-know/#41ac13e9719d

Despite CF’s Hold On Me, I’m Optimistic About the Future

Jul 19, 2019 04:45 am | Cystic Fibrosis News Moderator

Replies: 0
Click here to read Ella Balasa’s reflections on the impact CF has had on her life and how she stays positive despite the challenges she faces.
Do you consider yourself an optimist? Why or why not?

BreatheCon is a Worthwile Virtual CF Conference Experience

Jul 19, 2019 04:44 am | Cystic Fibrosis News Moderator

Replies: 0
Click here to read about Ella Balasa’s experience attending the virtual CF conference, BreatheCon, including how the event and its attendess inspired her.
Have you ever heard of this conference? Have you ever attended it or would you like to after reading Ella’s column?

We Need More Inclusive Criteria for CF Clinical Trials

Jul 19, 2019 04:43 am | Cystic Fibrosis News Moderator

Replies: 0
Ella Balasa is on a mission to widen the eligibility criteria for participants in clinical trials of investigational cystic fibrosis therapies. Click here to read more from Ella.
Do you agree with Ella? What criteria should be considered for CF clinical trials that currently isn’t?

I Empowered Myself by Testing CF Pseudomonas with Manuka Honey

Jul 19, 2019 04:40 am | Cystic Fibrosis News Moderator

Replies: 0
Ella Balasa, who has CF and is a scientist, tested the efficacy of a natural supplement, manuka honey, on Pseudomonas aeruginosa. Read more about the experiment here.
Have you ever tried this natural supplement? If so, what was your experience like?

Transforming Adversity into Progress

Jul 19, 2019 04:26 am | Cystic Fibrosis News Moderator

Replies: 0
Click here to read Tré LaRosa’s thoughts on the role of personal responsibility in the treatment of any disease, and how he chooses to use his internal struggles as motivation.
Do you agree with Tré? Do you take personal responsibility for your challenges and mindset?

Research Reveals How Cystic Fibrosis Affects Young Women’s Sexual Health

Jul 19, 2019 04:24 am | Cystic Fibrosis News Moderator

Replies: 0
A new survey of over 180 15-to-24-year-old females with cystic fibrosis looked at how the disease affects the reproductive and sexual health of young women. Read about the findings here.
What do you think of this study and its findings?

AzurRx Launches Trial Testing MS1819-SD Combined with PERT for Cystic Fibrosis

Jul 19, 2019 04:23 am | Cystic Fibrosis News Moderator

Replies: 0
AzurRx BioPharma has initiated a Phase 2 clinical trial testing MS1819-SD combined with PERT for CF patients with exocrine pancreatic insufficiency. Read more about it here.
What do you think of this news?