Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Chelsea Financial Services Supporting Boomer Esiason Foundation, CF Research at NYC Marathon The Art of Not Helping Orkambi of Definite Benefit But Risk Evident in Patients Who Can’t Tolerate It, French Study Finds I’m Grateful for the Journey That Led to My Service Dog Chelsea Financial Services Supporting Boomer Esiason Foundation, CF Research at NYC Marathon Oct 16, 2019 07:00 am | Marisa Wexler MS John Pirozzi, a representative of Chelsea Financial Services, will participate in the TCS New York City Marathon to raise money for cystic fibrosis research, the company announced. Pirozzi is specifically running in support of the Boomer Esiason Foundation, a nonprofit group working to connect leaders in medicine and business to improve awareness and education about […] The post Chelsea Financial Services Supporting Boomer Esiason Foundation, CF Research at NYC Marathon appeared first on Cystic Fibrosis News Today. Read More The Art of Not Helping Oct 15, 2019 09:00 am | Brad Dell My head is in the clouds right now. I took a heavy sleeping aid about half an hour ago, and wooh, that stuff hits fast and hard. The sleeping aid has become necessary some nights. I don’t know how to sleep when my phone keeps buzzing, buzzing, buzzing. I pick the buzzing thing up, and […] The post The Art of Not Helping appeared first on Cystic Fibrosis News Today. Read More Orkambi of Definite Benefit But Risk Evident in Patients Who Can’t Tolerate It, French Study Finds Oct 15, 2019 07:00 am | Alice Melão, MSc Treatment with Orkambi (lumacaftor/ivacaftor) can effectively improve overall health in adolescents and adults with cystic fibrosis, but its use can be risky for those who do not tolerate the therapy, a study of its use in almost 850 CF patients across France found. More than 18% of these patients discontinued Orkambi due to respiratory and […] The post Orkambi of Definite Benefit But Risk Evident in Patients Who Can’t Tolerate It, French Study Finds appeared first on Cystic Fibrosis News Today. Read More I’m Grateful for the Journey That Led to My Service Dog Oct 14, 2019 03:00 pm | Wendy Caroline I entered through the hospital doors and walked about 30 feet before becoming completely out of breath. I had a split second of panic before I remembered the heavy backpack I was wearing. I called my mom, who was ahead of me. She turned back and took my backpack from me so that I could […] The post I’m Grateful for the Journey That Led to My Service Dog appeared first on Cystic Fibrosis News Today. Read More Recent News Preventing the Spread of Misinformation UNITY Prenatal Blood Test Accurate at Diagnosing CF, Other Hereditary Diseases, Study Shows Viral Respiratory Tract Infections in Young CF Children Usually Mild, Study Found FDA Designates Vast’s BIOC11 a Qualified Infectious Disease Product Scientists Hope They Have Discovered New Form of CF Therapy