Cystic Fibrosis Weekly Update

Contents:

Scientists Hope They Have Discovered New Form of CF Therapy

Oct 09, 2019 07:00 am | Joana Carvalho, MSc

Scientists have discovered a new way to treat cystic fibrosis (CF) that involves delivering artificial proteins to patients’ lung cells to replace the faulty cystic fibrosis transmembrane conductance regulator (CFTR) protein. The finding was reported in the study, “Anion carriers as potential treatments for cystic fibrosis: transport in cystic fibrosis cells, and additivity to channel-targeting […]
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Sorry Not Sorry That I’m Sick

Oct 08, 2019 03:00 pm | Bailey Vincent

I’m sorry. I’m sorry for being sorry. Do you ever feel like all you do is apologize? It’s what I do best, and for that, I’m sorry. My friend Maria said something the other day that stopped me in my tracks: “Disabled and chronically ill people don’t need to apologize for our existence. Canceling an […]
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Experts Highlight Obstacles in Delivering New CF Therapies

Oct 08, 2019 07:00 am | Marisa Wexler MS

Care for cystic fibrosis (CF) has improved substantially in recent decades, but there are still challenges ahead, particularly in ensuring that all patients have access to the best available care, according to a new study. The Lancet, a renowned medical journal, commissioned nearly 40 experts to write a paper to explore the current state of […]
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Debunking the Myths About Vaccine Safety

Oct 07, 2019 09:00 am | Tré LaRosa

I dislike making other people feel uncomfortable. Turning a light-hearted conversation into a heavy one by referring to my sister’s death, or standing up for myself to reduce infection risk, is the social equivalent of getting an IV to me. Part of my journey has been learning to approach my self-advocacy in a way that […]
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