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Guiding Principles for Social Care
EUCERD Joint Action Workshop on 'Guiding Principles for Social Care in Rare Diseases', 09-10 October 2014, Norway - Presentations
- EUCERD Joint Action by Victoria Hedley, Newcastle University
- Specialised Social Services and integration of rare diseases into social policies: state of the art by Raquel Castro, EURORDIS
- Introduction to the workshop by Dorica Dan, EURORDIS and Raquel Castro, EURORDIS
State of the Art of Social Care Pathways:
- France by Christel Nourissier, Alliance Maladies Rares, EUROPLAN advisor and member of the Regional Committee for Rights and Autonomy of People Living with Disabilities
- Norway by Stein Are Aksnes, general director of the Norwegian National Advisory Unit on Rare Disorders
- Norway by Ragnhild Øverland Arnesen, Prader-willi Association Norway
- Italy by Simona Belagambi, UNIAMO, EUROPLAN advisor
- Sweden by Maria Montefusco, EUROPLAN advisor, project manager at the Council of Nordic Cooperation on Disability, Nordic Centre for Welfare and Social Issues
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