Nominate a RARE Champion of Hope

APRIL NEWSLETTER RARE Champion of Hope Awards Groundbreakers, leaders, advocates. We’re now accepting nominations for the RARE Champion of Hope Awards. Nominate someone from your community who inspires, encourages and ignites change. Submit a Poster Abstract for the RARE Drug Development Symposium Patient organizations, academics, researchers, industry, government agencies and healthcare professionals are invited to submit a poster abstract for the 2019 RARE Drug Development Symposium. Deadline to submit is April 5. Learn more or watch our recent webinar. Dash For Rare Run, walk, or cheer on our team! This year, we’re a 2019 SDCCU Charity Partner for the OC Marathon. Join us event weekend in Orange County or participate virtually from anywhere in the world. Join the Team Expand Your Reach at the Summit Join the growing list of RARE Patient Advocacy Summit exhibitors. Advocacy, industry, educational and research organizations are encouraged to take advantage of exhibiting at the largest educational event for rare disease patients, advocates, and thought leaders worldwide. RARE Compassion Project The RARE Compassion Project matches eligible rare disease patients and families with a medical student, giving both parties an opportunity to connect and learn about the challenges surrounding rare disease and healthcare. Learn More About the Matching Program  Community Spotlight Each year we’re inspired by the RARE Champions of Hope in our community. As we prepare to recognize this year’s nominees, take a look at the motivating story of 2018 RARE Champion of Hope, Gabby DiSalvo. Coming Up April 24, 2019: Rare Webinar - Poster Presentation Workshop Part 2 of 3 May 3-5, 2019: Dash for Rare May 3, 2019: Data DIY Workshop #1 - Irvine, CA May 4, 2019: RARE on the Road - Birmingham, AL May 18, 2019: RARE on the Road - Denver, CO June 7, 2019: RARE Drug Development Symposium* - Philadelphia, PA *Learn more about our RARE Entrepreneur Bootcamp July 13, 2019: RARE on the Road - Sioux Falls, SD September 18-20, 2019: RARE Patient Advocacy Summit - San Diego, CA Know of an event we missed? Add it to the Events Hub!

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