Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases

The following new articles have just been published in Orphanet Journal of Rare Diseases LETTER TO THE EDITOR Incomplete description of the current body of evidence of the health economics of Duchenne muscular dystrophy Erik Landfeldt, Hanns Lochmüller and Peter Lindgren Orphanet Journal of Rare Diseases 2019, 14:75 | Published on: 2 April 2019 Full Text | PDF RESEARCH “Getting ready for the adult world”: how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being Hamish W. Y. Wan, Kate A. Carey, Arlene D’Silva, Nadine A. Kasparian and Michelle A. Farrar Orphanet Journal of Rare Diseases 2019, 14:74 | Published on: 2 April 2019 Full Text | PDF

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