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 Rare Diseases

COVID-19 Disrupting Care for Nine of 10 People with Rare Condition
Global Genes, May 2020

As hospitals have curtailed services to focus on responding to the pandemic and minimizing the risk of infecting people, the survey found that six in 10 rare disease patients said they did not have access to medical therapies at home or at the hospital anymore, such as infusions, chemotherapy, and hormonal treatment.