Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Link Found Between P. aeruginosa Infection and Disease Severity in CF Patients, Study Reports Children Teach Us How to Love People with Health Conditions and Disabilities Toddlers Age 1-2 With CF Can Now Be Treated With Kalydeco in Canada Link Found Between P. aeruginosa Infection and Disease Severity in CF Patients, Study Reports Jan 30, 2019 07:00 am | Santiago Gisler Patients with cystic fibrosis (CF) who have never been exposed to the Pseudomonas aeruginosa bacterium have a  milder form of the disease, a retrospective study based on registry data suggests. The study, “Clinical and microbiological characteristics of cystic fibrosis adults never colonized by Pseudomonas aeruginosa: Analysis of the French CF registry,” was published in the journal Plos One. […] The post Link Found Between P. aeruginosa Infection and Disease Severity in CF Patients, Study Reports appeared first on Cystic Fibrosis News Today. Read More Children Teach Us How to Love People with Health Conditions and Disabilities Jan 29, 2019 09:00 am | Brad Dell A running joke among my friends is that “Brad hates kids.” Maybe I did. I could blame that on my obsession with having adult friends as a teen — in comparison to them, children seemed so naive. So yeah, people would always find me rolling my eyes at kids or saying their jokes are stupid. The […] The post Children Teach Us How to Love People with Health Conditions and Disabilitiesappeared first on Cystic Fibrosis News Today. Read More Toddlers Age 1-2 With CF Can Now Be Treated With Kalydeco in Canada Jan 29, 2019 07:00 am | Alice Melão Health Canada has approved the use of Kalydeco (ivacaftor) in toddlers age 1-2 years with certain genetic mutations that prevent the correct functioning of the CFTR protein, the therapy’s developer announced. With a pill taken twice a day, Kalydeco, by Vertex Pharmaceuticals, makes it possible to resolve the underlying cause of cystic fibrosis (CF) in people with […] The post Toddlers Age 1-2 With CF Can Now Be Treated With Kalydeco in Canada appeared first on Cystic Fibrosis News Today. Read More   Recent News The Burden of Care in the Life of a CF Patient Personalized Nutrition Programs May Help Improve Outcomes for CF Patients, Survey Suggests CF Foundation Gives $4.5M to Expedite Talee Bio’s Development of Two Gene Therapy Candidates Making Dreams Come True in Uncertain Times European Research Team Granted €6.8M to Develop Non-viral Gene Therapy System