Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Why the CF Community Should Be Concerned About Climate Change Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases Kalydeco Offers Better Quality of Life, Eased CF Symptoms, Patients Report Why the CF Community Should Be Concerned About Climate Change Aug 19, 2019 09:00 am | Tré LaRosa Climate change is an emergency facing humanity. As we continue to burn fossil fuels and release greenhouse gases, solar heat levels build up in the atmosphere, which acts as an incubator, causing our planet to get hotter. Some populations will be more severely affected by climate change than others — these include coastal communities, those […] The post Why the CF Community Should Be Concerned About Climate Change appeared first on Cystic Fibrosis News Today. Read More Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases Aug 19, 2019 07:30 am | Larry Luxner Imagine living your whole life with a painful disease so rare that only 25 others worldwide have what you have. And that you’re one of just six such people who’ve made it to adulthood. Neena Nizar doesn’t have to imagine. The 41-year-old English professor at Metro Community College in Elkhorn, Nebraska, was born with Jansen […] The post Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseasesappeared first on Cystic Fibrosis News Today. Read More Kalydeco Offers Better Quality of Life, Eased CF Symptoms, Patients Report Aug 19, 2019 07:00 am | Jose Marques Lopes, PhD Cystic fibrosis (CF) patients treated with Kalydeco (ivacaftor) who have the G551D mutation reported better health-related quality of life (HRQoL) and symptom relief than those on standard treatment who carry the F508del mutation in the CFTR gene, according to a real-world study. The research, “Patient-reported outcomes in patients with cystic fibrosis with a G551D mutation on […] The post Kalydeco Offers Better Quality of Life, Eased CF Symptoms, Patients Report appeared first on Cystic Fibrosis News Today. Read More Recent News I Can’t Visualize My Video Game Characters Without Cystic Fibrosis High Liver Enzyme Levels Linked to Risk of CF-Related Diabetes, Especially in Men, Study Finds Citing Costs, Scotland Regulators Reject Adding Orkambi and Symkevi to National Health System When Will I Be ‘Sick Enough’ for a Transplant? Lungs Grown in Yale Lab Have Potential for Patients with CF, Other Chronic Lung Diseases