Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases

The following new articles have just been published in Orphanet Journal of Rare Diseases RESEARCH Long-term efficacy and safety of sirolimus therapy in patients with lymphangioleiomyomatosis Siqi Hu, Xiuxiu Wu, Wenshuai Xu, Xinlun Tian, Yanli Yang, Shao-Ting Wang, Song Liu, Xingxiang Xu and Kai-Feng Xu Orphanet Journal of Rare Diseases 2019, 14:206 | Published on: 20 August 2019 Full Text | PDF RESEARCH Health service security of patients with 8 certain rare diseases: evidence from China’s national system for health service utilization of patients with healthcare insurance Rui Min, Xiaoyan Zhang, Pengqian Fang, Biyan Wang and He Wang Orphanet Journal of Rare Diseases 2019, 14:204 | Published on: 20 August 2019 Full Text | PDF RESEARCH Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy Brian Denger, Kathi Kinnett, Ann Martin, Sean Grant, Courtney Armstrong and Dmitry Khodyakov Orphanet Journal of Rare Diseases 2019, 14:205 | Published on: 20 August 2019 Full Text | PDF

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