Topics in the CF News Today Forum That You Might Have Missed

Cystic Fibrosis News Today Weekly Forum Digest Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed! New to our forums? Register here.   Survivor's Guilt? Aug 05, 2019 07:45 am | William Replies: 1 How do you guys deal with survivors guilt? I know it’s something that we all go through, but probably process differently. How do you deal with it? Read More Development Bank of Wales Raises Funds for UK’s Cystic Fibrosis Trust Aug 05, 2019 07:07 am | Cystic Fibrosis News Moderator Replies: 0 Employees at the Development Bank of Wales, in the U.K., have raised £30,400 (around $37,000) to support the Cystic Fibrosis Trust. Read more about it here. What are your thoughts about this? Read More CF Patients Using Nebulizer While Lying on Sides Can Show Better Lung Deposition, Study Finds Aug 05, 2019 07:06 am | Cystic Fibrosis News Moderator Replies: 0 A study found that nebulized treatment taken while lying on alternating sides didn’t lessen its efficacy, and particularly helped those with milder CF. Read more about it here. What are your thoughts about this study and its findings? Read More Oklahoma Ranks Lowest on Key Rare Disease Programs on NORD’s 2019 State Report Card Aug 02, 2019 05:49 am | Cystic Fibrosis News Moderator Replies: 0 Click here to read why Oklahoma performed so poorly in NORD’s latest “State Report Card” when it comes to policies and programs of importance to rare diseases. What are your thoughts about this? Read More Let’s Talk About Money: Dollars and Disabilities in the Workplace Aug 02, 2019 05:45 am | Cystic Fibrosis News Moderator Replies: 0 Click here to read Elly Aylwin-Foster column about salaries for workers with disabilities and her newfound assertiveness about money. What did you think of this column? Read More Let’s Talk About Disability Language Aug 01, 2019 04:32 am | Cystic Fibrosis News Moderator Replies: 0 Click here to read Tré LaRosa’s column about the effect he believes disability language can have on individuals and communities. What do you think about disability language? Do you use it? Read More Who is Vertex’s New CEO? Aug 01, 2019 04:30 am | Cystic Fibrosis News Moderator Replies: 0 Jeffrey Leiden, who led Vertex’s ongoing drive to treat 90% of cystic fibrosis patients, is retiring as CEO. Click here to find out who has been chosen to succeed him. What are your thoughts about this? Read More Arts, Education and Advocacy Programs Receive CF Foundation Grants Aug 01, 2019 04:19 am | Cystic Fibrosis News Moderator Replies: 0 Five programs working to empower the CF community are recipients of this year’s Impact Grants, an up to $10,000 award by the Cystic Fibrosis Foundation. Learn more about the winning programs here. Which of these programs is of most interest to you? Read More Mylan Approved to Market CF Treatments in UK Aug 01, 2019 04:16 am | Cystic Fibrosis News Moderator Replies: 0 Mylan has been granted rights to market in the U.K. TOBI Solution and TOBI Podhaler to treat P. aeruginosa lung infections in cystic fibrosis patients. Read more here. How do you feel about this news? Read More This Treatment Improves CFTR Function in Cellular, Animal Models of CF Jul 31, 2019 01:30 pm | Cystic Fibrosis News Moderator Replies: 1 Click here to read about the findings of a new study showing that eluforsen improves the function of the CFTR protein in cellular and animal models of cystic fibrosis. What do you think of this study and its findings? Read More