martes, 13 de agosto de 2019

Topics in the CF News Today Forum That You Might Have Missed



Cystic Fibrosis News Today Weekly Forum Digest

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Starting an Empathy Movement in Healthcare

Aug 13, 2019 03:47 am | Cystic Fibrosis News Moderator



Replies: 0
Columnist Bailey Anne Vincent discusses kinesthetic empathy and how those who practice modern medicine could learn a thing or two from the art of dance. Click here to read more from Bailey.
What did you think of this column? Can you relate to what Bailey wrote?
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Inhaled Form of Teicoplanin for CF Patients Goal of Italfarmaco, Neupharma Partnernership

Aug 13, 2019 03:46 am | Cystic Fibrosis News Moderator



Replies: 0
Italfarmaco and Neupharma plan to develop an inhaled formulation of the antibiotic teicoplanin to treat resistant, Gram-positive bacteria like MRSA. Read more about it.
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CF Foundation Earmarks $15M for Arcturus Therapeutics’ LUNAR-CF

Aug 13, 2019 03:45 am | Cystic Fibrosis News Moderator



Replies: 0
The CF Foundation will give up to $15 million to Arcturus Therapeutics to support the development of RNA therapy LUNAR-CF to treat cystic fibrosis. Click here to read more about it.
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Accepting the Bumps in the Road

Aug 10, 2019 05:24 am | Cystic Fibrosis News Moderator



Replies: 1
Click here to read Elizabeth Rogers’ column about the downside to powering through pain to achieve fitness goals.
Do you enjoy working out? Do you struggle to take breaks when you’re not feeling well?
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Let’s Talk About Disability Language

Aug 09, 2019 11:07 pm | Cystic Fibrosis News Moderator



Replies: 3

Click here to read Tré LaRosa’s column about the effect he believes disability language can have on individuals and communities.
What do you think about disability language? Do you use it?
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Everything’ Will Never Be Perfect, and That’s OK

Aug 09, 2019 05:36 am | Cystic Fibrosis News Moderator



Replies: 0
Columnist Tré LaRosa has come to realize that, even when he is not being productive, he continues to have value as a person. Click here to read more from Tré.
What about you? Do you struggle with this issue?
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Use Me for Something Good

Aug 09, 2019 05:36 am | Cystic Fibrosis News Moderator



Replies: 0
Columnist Elly Aylwin-Foster is still searching for her purpose in life, but she’s confident it’s going to be something good. Click here to read more from Elly.
What do you think your purpose is?
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The Hidden Reality of Not Being a Morning Person

Aug 09, 2019 05:34 am | Cystic Fibrosis News Moderator



Replies: 0
Wendy Caroline admits she is not a morning person, but there is more to the story than just not wanting to get out of bed. Click here to read more from Wendy.
Are you a morning person? How do you like to start your day?
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Groups Seek Public Support of Newborn Screening Reauthorization Act

Aug 07, 2019 12:40 am | Cystic Fibrosis News Moderator



Replies: 0
Patient groups want members of the public to contact their senators in favor of a bill to extend, strengthen federal support for newborn screening programs. Read more about it.
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Long-term Treatment with Kalydeco Reduces Risk of CF Lung Infection, Study Reports

Aug 07, 2019 12:39 am | Cystic Fibrosis News Moderator



Replies: 0

Treatment for three years with the approved therapy Kalydeco reduces the risk of serious lung infection in cystic fibrosis, a UK study reports. Read more about it here.
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