Last Posted: Jan 10, 2020
- Safeguarding the future of genomic research in South Africa: Broad consent and the Protection of Personal Information Act No. 4 of 2013.
Staunton C et al. South African medical journal = Suid-Afrikaanse tydskrif vir geneeskunde 2019 Jun 109(7) 468-470 - Sharing with Strangers: Governance Models for Borderless Genomic Research in a Territorial World.
Juengst Eric T et al. Kennedy Institute of Ethics journal 2019 29(1) 67-95 - Data Sharing for the Public Good.
Helzlsouer Kathy J et al. Journal of the National Cancer Institute 2020 Jan - Access and Management: Indigenous Perspectives on Genomic Data Sharing.
Garrison Nanibaa' A et al. Ethnicity & disease 2019 29(Suppl 3) 659-668 - Genomic variant sharing: a position statement.
Wright Caroline F et al. Wellcome open research 2019 422 - Psychological factors that determine people's willingness-to-share genetic data for research.
Bearth Angela et al. Clinical genetics 2019 Dec - Qatar Biobank: A Paradigm of Translating Biobank Science into Evidence-Based Health Care Interventions.
Fthenou Eleni et al. Biopreservation and biobanking 2019 Dec 17(6) 491-493 - As Use of Genomic Data Expands in Cancer Care, Patients Share Their Stories
NCI, December 3, 2019 - Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.
Middleton Anna et al. European journal of human genetics : EJHG 2019 Nov - DNA Data Marketplace: An Analysis of the Ethical Concerns Regarding the Participation of the Individuals.
Ahmed Eman et al. Frontiers in genetics 2019 101107
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