miércoles, 15 de enero de 2020

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Cystic Fibrosis Weekly Update

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Approaches Like Yoga, Along with Meds, Key to Managing CF Pain, Experts Say

Jan 15, 2020 07:00 am | Larry Luxner



NACFC 2019Tiffany Rich is something of a celebrity in the world of cystic fibrosis (CF). Diagnosed at birth, she graduated college while awaiting a double lung transplant. The co-founder of Salty Cysters, she’s been featured in Cosmopolitan magazine, and has written numerous blogs on the disease. Recently, the 28-year-old patient advocate described how she uses physical […]
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Trikafta Will Be ‘Life-Transforming,’ Especially for Younger CF Patients, Researchers Say

Jan 14, 2020 07:00 am | Ana Pena, PhD



Trikafta is expected to be a “game-changing” therapy for cystic fibrosis (CF), especially for younger patients, say researchers at Children’s Hospital of Richmond at Virginia Commonwealth University (VCU), who were involved in Trikafta trials where marked improvements were seen in patients taking the therapy. The medicine, developed by Vertex Pharmaceuticals, is a next-generation triple combination treatment […]
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