Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases

The following new articles have just been published in Orphanet Journal of Rare Diseases RESEARCH Healthcare trajectory of children with rare bone disease attending pediatric emergency departments David Dawei Yang, Geneviève Baujat, Antoine Neuraz, Nicolas Garcelon, Claude Messiaen, Arnaud Sandrin, Gérard Cheron, Anita Burgun, Zagorka Pejin, Valérie Cormier-Daire and François Angoulvant Orphanet Journal of Rare Diseases 2020, 15:2 | Published on: 3 January 2020 Full Text | PDF RESEARCH The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers Anna L. Bruckner, Michael Losow, Jayson Wisk, Nita Patel, Allen Reha, Hjalmar Lagast, Jamie Gault, Jayne Gershkowitz, Brett Kopelan, Michael Hund and Dedee F. Murrell Orphanet Journal of Rare Diseases 2020, 15:1 | Published on: 3 January 2020 Full Text | PDF

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