Cystic Fibrosis News Today Weekly Forum Digest

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CF Patients Improve Lung Function with Elexacaftor Combo, Data Show

Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator

Replies: 0

Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here.
What do you think of this news?

Antabio Awarded $4.4M for Continued Research for CF Lung Infection Therapy

Jan 21, 2020 02:56 am | Cystic Fibrosis News Moderator

Replies: 0
Antabio has received $4.4 million to continue its research for a therapy against Pseudomonas aeruginosa lung infections in people with cystic fibrosis. Click here to learn more.
What do you think of this news?

Going Home On IVs: Overwhelming or Amazing?

Jan 20, 2020 08:29 am | Bailey Vincent

Replies: 1
I just got out of another hospital stay and wanted to know: How do you adjust to life after being in the hospital?
Thanks to this latest infection, I had the option of staying in the hospital for 2 more weeks of IV antibiotics, or going home using home healthcare. Because I am a mother and a business owner (but mostly because I’m a Momma), I of course voted for the latter despite the increase in fiscal burden to my family (more on that tomorrow).
However, being at home can often be overwhelming, because now the burden of multiple meds is on my shoulders almost entirely and I am “tethered” a majority of the time.
How do you handle this process, and what helps you most?

Researchers Develop New Device to Eliminate Mucus Secretion in CF

Jan 20, 2020 02:55 am | Cystic Fibrosis News Moderator

Replies: 0
Israeli and U.S. researchers have developed a new technology that can unclog and eliminate mucus secretions from the airways of people with cystic fibrosis. Click here to read more about it.
What do you think of this news?

CF and alcohol consumption

Jan 17, 2020 06:52 am | Jenny Livingston

Replies: 0
I’ve seen the following scenario play out more than a few times:
Someone posts a picture of themselves enjoying drinks with friends, and inevitably someone else comments that it’s not okay for people with CF to drink alcohol. Let’s unpack that a little bit, shall we?
Sure, there are concerns about excessive alcohol consumption but that goes for anyone, not just those of us with CF! Alcohol can interact negatively with some medications and might make others less effective. Alcohol can affect sleep patterns, which can make for a poor night’s sleep. Also, since alcohol is a depressant, it can impair a person’s respiratory system. For some people with compromised liver function, alcohol consumption can be dangerous. (This is certainly not an extensive list of concerns, just the first ones that came to mind.)
But is alcohol a hard no simply because of CF? I don’t think so.
I believe it’s a good idea to talk to your care team about it, and you should definitely be of legal age, but I don’t think it’s a universal rule that people with CF cannot enjoy a drink every now and then.
What do you think? Do you choose to drink or do you refrain from alcohol consumption? What has your experience been?

My CF Is My Burden Alone

Jan 17, 2020 05:41 am | Cystic Fibrosis News Moderator

Replies: 0
As he’s getting older, Tré LaRosa is taking stock of his relationships. He understands that his loved ones are going to worry about him, but CF is his burden alone. Click here to find out why he feels that way.
Can you relate to Tré? What do you do when loved ones express concerns about your health?