Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Wedding Planning with Cystic Fibrosis What Does It Mean to Be ‘Normal’? #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington Wedding Planning with Cystic Fibrosis Sep 24, 2018 09:00 am | Wendy Caroline You’ve somehow found someone to walk through the life that is a cystic fibrosis life without scaring them off. Great! Now, how the heck do you go about planning a wedding that is fun, special, and undamaging to your health? This is a dilemma that I dealt with all summer. Now that I have survived […] The post Wedding Planning with Cystic Fibrosis appeared first on Cystic Fibrosis News Today. Read More What Does It Mean to Be ‘Normal’? Sep 24, 2018 09:00 am | Tré LaRosa A strange reality of living with cystic fibrosis (CF) is that we’re usually the only person with the disease we actively, directly engage with, aside from maybe siblings. The many aspects of routine CF care — preparing medications for the week, reconstituting antibiotics, Vest treatments, sterilizing nebulizers, IV antibiotic administration, coughing throughout the day — can […] The post What Does It Mean to Be ‘Normal’? appeared first on Cystic Fibrosis News Today. Read More #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington Sep 24, 2018 07:00 am | Larry Luxner More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to converge on Washington, D.C., next month for the 2018 NORD Rare Diseases & Orphan Products Breakthrough Summit. The Oct. 15-16 event, sponsored by the National Organization for Rare Diseases (NORD), takes place at the Marriott Wardman Park Hotel. BioNews Services, which publishes […] The post #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington appeared first on Cystic Fibrosis News Today. Read More   Recent News Dietary Flavonoids May Help in Managing CF Through Impact on Gut Bacteria, Small Study Suggests FDA Gives Green Light to 2 Trials for AB-PA01, Potential Therapy Against P. aeruginosa Infections Worthwhile Experiences at BreatheCon, a Virtual CF Conference Electronic Nose Offers Easy, Accurate Test for CF in Children, Pilot Study Finds 7 Ways to Cherish Your Quality of Life