Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Using Food as Medicine to Manage CF: A Nutritionist’s View AzurRx Starts Phase 2 Clinical Trial Testing MS1819-SD in CF Patients With EPI Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish Gene Expression Patterns in Blood May Lead to Patient-tailored CF Treatment, Study Finds Using Food as Medicine to Manage CF: A Nutritionist’s View Dec 21, 2018 07:00 am | Alana Kessler As a clinician, I have consulted with many patients over the years and have had the opportunity to be inspired and impacted by many. Most recently I had the pleasure of connecting with Brad, who shared with me his hero-like journey with cystic fibrosis. What struck me the most, besides his unbelievably positive outlook on […] The post Using Food as Medicine to Manage CF: A Nutritionist’s View appeared first on Cystic Fibrosis News Today. Read More AzurRx Starts Phase 2 Clinical Trial Testing MS1819-SD in CF Patients With EPI Dec 21, 2018 07:00 am | Santiago Gisler AzurRx BioPharma announced it has started a Phase 2 clinical trial testing the safety, tolerability, and efficacy of MS1819 Spray Dried (MS1819-SD) therapy in cystic fibrosis (CF) patients with exocrine pancreatic insufficiency (EPI). The trial was approved in October by the U.S. Food and Drug Administration. Many CF patients develop EPI as a result of […] The post AzurRx Starts Phase 2 Clinical Trial Testing MS1819-SD in CF Patients With EPIappeared first on Cystic Fibrosis News Today. Read More Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish Dec 20, 2018 07:30 am | Larry Luxner Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures — at exactly the same time as the promise of new but expensive therapies to treat rare diseases has never been greater. That’s the paradox faced by pharmaceutical companies as well as patient advocacy groups in Europe, where roughly 10 percent […] The post Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish appeared first on Cystic Fibrosis News Today. Read More Gene Expression Patterns in Blood May Lead to Patient-tailored CF Treatment, Study Finds Dec 20, 2018 07:00 am | Santiago Gisler Researchers tested blood samples from cystic fibrosis (CF) patients and identified distinct gene expression patterns that could lead to patient-tailored treatments, a study reports. The study, “Identification of molecular signatures of cystic fibrosis disease status using plasma-based functional genomics,” was published in Physiological Genomics. To better understand CF disease progression and ultimately improve patient care, […] The post Gene Expression Patterns in Blood May Lead to Patient-tailored CF Treatment, Study Finds appeared first on Cystic Fibrosis News Today. Read More   Recent News CFF Aids Development of NO-based Therapy, BIOC51, for Resistant Bacteria, Vast Therapeutics Says New Dual-antibiotic Powder Inhalation More Effective Against Drug-resistant Bacteria, Researchers Say How Should We Approach Milestones While Grieving? Health Canada Approves Orkambi to Treat Preschoolers with Two F508del Mutations Aridis Enrolling CF Patients to Test AR-501 in Chronic Lung Infections