jueves, 3 de enero de 2019

A STAR Is Born | New Year, More Opportunities to Care about Rare

A STAR Is Born


Happy New Year! A new year brings new opportunities to get involved, advocate, support and care about rare. Join us as we head into 2019 excited to empower the rare disease community.
RARE in the Square is one week away. Meet us January 7-9, 2019, in San Francisco's Union Square as rare disease innovators and investors convene to catalyze partnerships in support of rare disease drug development. In collaboration with Demy Colton and EBD Group, Global Genes is also hosting a panel during the 2019 Biotech Showcase. Join us as we discuss the new era of patient-led collaborations in rare disease drug discovery. Learn More
RARE is Hitting the Road!
Take your advocacy efforts to the next level by attending RARE on the Road. Join Global Genes and the EveryLife Foundation for our third RARE on the Road Leadership Tour. This year's stops include Boston, Birmingham, Denver, and Sioux Falls.
Community Spotlight
Founder of the Salla Treatment and Research Foundation and mother of a rare disease son, Jessica Klein-Foglio, is using her music industry connections to raise money for Salla Disease. Read More
New Year, New Global Genes!
There's a new look coming to globalgenes.org. Stay tuned for the launch of the new Global Genes website, coming soon!
Coming Up
January 7-9, 2019: RARE in the Square
February 24-28, 2019: Rare Disease Week
March 30, 2019: RARE on the Road - Boston, MA
May 4, 2019: RARE on the Road - Birmingham, AL
May 18, 2019: RARE on the Road - Denver, CO
July 13, 2019: RARE on the Road - Sioux Falls, SD
Know of an event we missed? Let us know.

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