Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Empowering Children by Educating Them About Their CF Claire’s Place Foundation Grants to Help CF Families Reaches $1 Million Milestone Vertex to Request Review of Orkambi, Symkevi Plus Kalydeco for Public Funding in Scotland Empowering Children by Educating Them About Their CF Jan 07, 2019 09:00 am | Tré LaRosa One of my earliest memories from elementary school was leaving class a little early before lunch to go to the nurse’s office to take my enzymes, always accompanied by a school peer. I wasn’t allowed to bring my enzymes with me to school because entrusting a young kid to take their medication on time was […] The post Empowering Children by Educating Them About Their CF appeared first on Cystic Fibrosis News Today. Read More Claire’s Place Foundation Grants to Help CF Families Reaches $1 Million Milestone Jan 04, 2019 07:00 am | Mary Chapman After eight years of easing the financial burden of protracted hospital stays, Claire’s Place Foundation has reached the $1 million mark in assistance to families living with cystic fibrosis (CF). The foundation, launched in 2011, provides emotional and financial support to those touched by the disease. To date, its ongoing Extended Hospital Stay grant program has helped […] The post Claire’s Place Foundation Grants to Help CF Families Reaches $1 Million Milestoneappeared first on Cystic Fibrosis News Today. Read More Vertex to Request Review of Orkambi, Symkevi Plus Kalydeco for Public Funding in Scotland Jan 03, 2019 07:00 am | Vijaya Iyer Vertex Pharmaceuticals has announced its intention to submit an application to the Scottish Medicines Consortium (SMC) to review the clinical and cost-effectiveness of the company’s cystic fibrosis (CF) medicines, Orkambi (lumacaftor/ivacaftor), as well as Symkevi (tezacaftor/ivacaftor) in combination with Kalydeco (ivacaftor). Following the appraisal of data submitted by Vertex, the SMC will decide whether to accept these CF therapies […] The post Vertex to Request Review of Orkambi, Symkevi Plus Kalydeco for Public Funding in Scotland appeared first on Cystic Fibrosis News Today. Read More   Recent News Top 10 Cystic Fibrosis Stories of 2018 Using Food as Medicine to Manage CF: A Nutritionist’s View AzurRx Starts Phase 2 Clinical Trial Testing MS1819-SD in CF Patients With EPI Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish Gene Expression Patterns in Blood May Lead to Patient-tailored CF Treatment, Study Finds