From National Institutes of Health Web Sites
- Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations
AM Issa et al, Genetics in Medicine, July 10, 2018 - Clinical Trials Bring Hope to Kids with Spinal Muscular Atrophy
F Collins, NIH Director's blog, Nov 21, 2017 - February is American Heart Month. What are rare diseases involving the heart.
NIH Office of Rare Diseases - Molecular Answers Found for a Mysterious Rare Immune Disorder
Francis Collins, NIH Director, Blog Post, March 29, 2016 - Notice of Intent to Publish a Funding Opportunity Announcement for Rare Disease Cohorts in Heart, Lung, Blood and Sleep Disorders
NHLBI, Apr 2018 - Rare Disease 2019 Information Packet
NIH, October 2018 - Rare Disease Day at NIH
On February 27, 2015, the National Institutes of Health (NIH) will celebrate the eighth annual Rare Disease Day with a day-long celebration - Rare Disease Day, February 27, 2017
NIH, National Centers for Advancement of Translational Sciences - Research Round-up: Rare Disease Research
Researchers seek to expand our understanding and develop new treatments, NICHD< February 1, 2016
.png)
No hay comentarios:
Publicar un comentario