21st February 2019
Rare Disease Day Policy Event at the United Nations
Second High-Level Event of the NGO Committee for Rare Diseases
Follow the event online through the live-stream!
(link available in February)
with the sponsorship of the Permanent Mission of Estonia to the United Nations,
is organising its second high-level event at the United Nations.
Where: Conference Room 8, United Nations Headquarters, New York
Please be aware that confirmation will be necessary in order to attend due to limited seat capacity.
New York during its First High-Level Event: the ‘Global Gathering for Rare Diseases’, with the participation
of senior officials from the main UN agencies and bodies (WHO, UNICEF, UNDP, ECOSOC) and delegates from
a number of sponsoring countries. On that occasion, the link between the rare diseases community’s goals
and the UN SDGs 2030 Agenda was established and a call for the establishment of rare diseases as a global
public health priority within the UN system was issued.