Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Orkambi Eases Flares Even in CF Patients Slow to Show Improvement in Lung Health, Trial Data Show Mutations Linked to Severe CF Seen to Affect Health of Heart’s Left Ventricle in Study The Claire Wineland Message I Hope We Never Forget Public Invited to Vote on Two AbbVie CF Student Scholarship Awards Orkambi Eases Flares Even in CF Patients Slow to Show Improvement in Lung Health, Trial Data Show Sep 14, 2018 08:50 am | Patricia Inacio, PhD Cystic fibrosis patients who failed to show early improvements in lung function while being treated with Orkambi (lumacaftor/ivacaftor) still experienced fewer pulmonary exacerbations than those given a placebo in Phase 3 studies, a pooled analysis of those trials reports. Clinicians should consider the totality of outcomes when examining the benefits of CFTR modulators like Orkambi, researchers suggest. […] The post Orkambi Eases Flares Even in CF Patients Slow to Show Improvement in Lung Health, Trial Data Show appeared first on Cystic Fibrosis News Today. Read More Mutations Linked to Severe CF Seen to Affect Health of Heart’s Left Ventricle in Study Sep 13, 2018 07:00 am | Alice Melão Mutations in the CFTR gene that associate with severe disease can also lead to cardiac problems — specifically, the development of subclinical left ventricular dysfunction — in cystic fibrosis patients, a study suggests. The study, “Subclinical Left Ventricular Dysfunction is Influenced by Genotype Severity in Patients with Cystic Fibrosis,” was published in the journal Clinical Medicine […] The post Mutations Linked to Severe CF Seen to Affect Health of Heart’s Left Ventricle in Studyappeared first on Cystic Fibrosis News Today. Read More The Claire Wineland Message I Hope We Never Forget Sep 12, 2018 09:00 am | Janeil Whitworth The passionate outpouring following Claire Wineland’s devastating passing last week has exemplified the influence she had on her friends and family, the cystic fibrosis community, and the millions of strangers she inspired. She was incredibly loved and admired — that was so very apparent. I’m sure you can agree once you have heard Claire speak. It […] The post The Claire Wineland Message I Hope We Never Forget appeared first on Cystic Fibrosis News Today. Read More Public Invited to Vote on Two AbbVie CF Student Scholarship Awards Sep 12, 2018 07:30 am | Janet Stewart, MSc The public is invited to vote and help determine this year’s AbbVie Thriving Undergraduate and Thriving Graduate Scholarships among eligible students with cystic fibrosis (CF). The criteria for selecting the winners are academic excellence, creativity, and community involvement/extracurricular activities. Each scholarship totals $25,000 and will be awarded to two deserving students. Earlier this year, 40 undergraduate and graduate […] The post Public Invited to Vote on Two AbbVie CF Student Scholarship Awards appeared first on Cystic Fibrosis News Today. Read More Recent News The 4 Deaths that Mold Me Two Phase 3 Trials of Vertex’s Triple Combination Therapy with VX-659 Are Fully Enrolled Grieving in an ‘Always Online’ World Vertex and Treating CF: 3 Disease-modifying Therapies Make Leap from Lab to Patients Reminders to Those Who Mourn