Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Vertex and Treating CF: High Hopes for Triple Combinations and Gene Therapy Possibilities 3 Cystic Fibrosis Diagnosis Stories Vertex and Treating CF: High Hopes for Triple Combinations and Gene Therapy Possibilities Sep 17, 2018 07:00 am | Emma Yasinski Editor’s note: This is third in a four-part series looking at Vertex Pharmaceuticals and its “all in for CF” approach. Here, we look at potential “next-generation” treatments that range from triple combinations in or readying for clinical trials, to gene editing that has a way to go. The research that led to Vertex being popularly known as “the […] The post Vertex and Treating CF: High Hopes for Triple Combinations and Gene Therapy Possibilities appeared first on Cystic Fibrosis News Today. Read More 3 Cystic Fibrosis Diagnosis Stories Sep 14, 2018 03:00 pm | Luisa Palazola Earlier this week, I asked the community via Instagram when their first sweat test for diagnosis was. The array of answers made me realize how widely our cystic fibrosis diagnosis stories vary. CF sometimes can present itself in ways that make diagnosis as an infant obvious, or a family diagnosis can provoke a parent’s diagnosis well […] The post 3 Cystic Fibrosis Diagnosis Stories appeared first on Cystic Fibrosis News Today. Read More   Recent News Orkambi Eases Flares Even in CF Patients Slow to Show Improvement in Lung Health, Trial Data Show Mutations Linked to Severe CF Seen to Affect Health of Heart’s Left Ventricle in Study The Claire Wineland Message I Hope We Never Forget Public Invited to Vote on Two AbbVie CF Student Scholarship Awards The 4 Deaths that Mold Me