A Big Month Ahead for the Rare Disease Community

FEBRUARY NEWSLETTER Congratulations to the 2019 RARE Patient Impact Grant recipients! Each project funded brings a tangible difference to the rare disease community. Learn More RARE on the Road Global Genes and the EveryLife Foundation are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates. The first event takes place in Boston, Massachusetts on March 30th. Register Here Global Genes Has a New Look! We are thrilled to announce the launch of the new globalgenes.org! We invite you to take a look around, create a profile in the RARE Portal and connect with others in the rare community. World Rare Disease Day is February 28th. Download the #CareAboutRare sign and tell us why you care about rare. Tag #WRDD2019 and #CareAboutRare on social to celebrate all month long. Get Involved   Community Highlight Nadia Bodkin discusses The Rare Advocacy Movement's strategy, what it means to be a Trailblazer of Rare Advocacy and what's ahead. Read More   Coming Up February 24-28, 2019: Rare Disease Week March 30, 2019: RARE on the Road - Boston, MA May 4, 2019: RARE on the Road - Birmingham, AL May 18, 2019: RARE on the Road - Denver, CO June 7, 2019: RARE Drug Development Symposium - Philidelphia, PA July 13, 2019: RARE on the Road - Sioux Falls, SD Know of an event we missed? Add it to the Events Hub!