Cystic Fibrosis Weekly Update

Contents:

My Family Had 2 Children with CF

Feb 11, 2019 09:00 am | Tré LaRosa

It was unlikely that my parents would bear two children with CF. When both parents carry a CF mutation but don’t have the disease itself, there is a 1 in 4 chance that a child will have CF. To determine the likelihood of two events independent of one another to both happen (since one child having […]
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Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

Feb 11, 2019 07:30 am | Mary Chapman

Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run as high as 350 million — they are thought to impact. Across countries, patients, caregivers and advocates will paint faces, wear denim ribbons and zebra-like stripes, contact policymakers, […]
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New company Recida to Focus on Developing Therapies Against Antibiotic-resistant Bacteria

Feb 11, 2019 07:00 am | Patricia Inacio, PhD

Frazier Healthcare Partners has launched a new biopharmaceutical company called Recida Therapeutics, which will develop new therapies for serious antibiotic-resistant infections, including Pseudomonas aeruginosa, the leading cause of lung infections in cystic fibrosis (CF) patients. RC-01 is Recida’s lead therapy candidate for multidrug-resistant Gram-negative bacteria, a group of bacteria that have become increasingly resistant to available antibiotic therapies, […]
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CF Family Friday: The Gaudenzi Mother-Daughter Duo

Feb 08, 2019 03:00 pm | Luisa Palazola

The cystic fibrosis (CF) journey necessitates numerous partnerships, and while a medical partnership is one of the most constructive, family support systems hold immeasurable power. This post launches the series Family Friday, which spotlights support persons. We start with a conversation between Cystic Fibrosis News Today community manager Luisa Palazola and the Gaudenzi mother-daughter duo from Toronto, […]
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