lunes, 11 de febrero de 2019

Cystic Fibrosis News Today Weekly Digest


Cystic Fibrosis Weekly Update

Contents:

My Family Had 2 Children with CF

Feb 11, 2019 09:00 am | Tré LaRosa



cf siblingsIt was unlikely that my parents would bear two children with CF. When both parents carry a CF mutation but don’t have the disease itself, there is a 1 in 4 chance that a child will have CF. To determine the likelihood of two events independent of one another to both happen (since one child having […]
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Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

Feb 11, 2019 07:30 am | Mary Chapman



Rare Disease DayScores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run as high as 350 million — they are thought to impact. Across countries, patients, caregivers and advocates will paint faces, wear denim ribbons and zebra-like stripes, contact policymakers, […]
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New company Recida to Focus on Developing Therapies Against Antibiotic-resistant Bacteria

Feb 11, 2019 07:00 am | Patricia Inacio, PhD



Recida TherapeuticsFrazier Healthcare Partners has launched a new biopharmaceutical company called Recida Therapeutics, which will develop new therapies for serious antibiotic-resistant infections, including Pseudomonas aeruginosa, the leading cause of lung infections in cystic fibrosis (CF) patients. RC-01 is Recida’s lead therapy candidate for multidrug-resistant Gram-negative bacteria, a group of bacteria that have become increasingly resistant to available antibiotic therapies, […]
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CF Family Friday: The Gaudenzi Mother-Daughter Duo

Feb 08, 2019 03:00 pm | Luisa Palazola



familyThe cystic fibrosis (CF) journey necessitates numerous partnerships, and while a medical partnership is one of the most constructive, family support systems hold immeasurable power. This post launches the series Family Friday, which spotlights support persons. We start with a conversation between Cystic Fibrosis News Today community manager Luisa Palazola and the Gaudenzi mother-daughter duo from Toronto, […]
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Recent News

Enrollment Info Updated on Phase 3 Trial Assessing AeroVanc for MRSA Infection in CF
Medical Marijuana ‘Can Help Everyone,’ Says Director at Maryland Cannabis Facility
Research Partners Work to Simplify, Improve Assessment of Lungs for Transplant
My CF Symptoms Have Made Easy Bullying Targets
Utah’s Somer Love Battles CF with Kindness and Strength

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