Cystic Fibrosis News Today Weekly Digest |

Cystic Fibrosis Weekly Update Contents: An Open Letter to the ‘How Are You Feeling?’ Folks ‘Five Feet Apart,’ Film About Teens with CF and Young Love, Teams Up with Fashion Retailer rue21 A Life Intimate with Death Is Not a Life Deprived of Beauty Tobramycin Fights P. aeruginosa Bacteria That Impair CFTR Function, Study Says It’s Hard to Be Graceful While Becoming Disabled An Open Letter to the ‘How Are You Feeling?’ Folks Feb 13, 2019 09:00 am | Janeil Whitworth Dear “How are you feeling?” folks, Those of us with a chronic illness hear repeatedly — and secretly dread — questions such as the following: “How are you feeling? How have you been doing? Are you feeling any better? Are you hanging in there?” We try to smile and reply with our rehearsed responses. Let […] The post An Open Letter to the ‘How Are You Feeling?’ Folks appeared first on Cystic Fibrosis News Today. Read More ‘Five Feet Apart,’ Film About Teens with CF and Young Love, Teams Up with Fashion Retailer rue21 Feb 13, 2019 07:00 am | Mary Chapman “Five Feet Apart,” an upcoming romantic movie about two teens with cystic fibrosis (CF) who fall in love while undergoing treatment, now has a marketing partner — rue21. The film is set to open at theaters around the U.S. on March 15, a press release states. An apparel and accessories retailer, rue21 will donate an undisclosed amount to […] The post ‘Five Feet Apart,’ Film About Teens with CF and Young Love, Teams Up with Fashion Retailer rue21 appeared first on Cystic Fibrosis News Today. Read More A Life Intimate with Death Is Not a Life Deprived of Beauty Feb 12, 2019 09:00 am | Brad Dell I gaze through a frosted window on a mountaintop near Lake Tahoe. It’s a church youth group retreat. The students play in the snow, sledding and laughing. I’m sipping Earl Grey while scrawling notes into a journal — combined with snowfall, it’s a recipe for sentimentality. I glimpse snowflakes and see each as representative of […] The post A Life Intimate with Death Is Not a Life Deprived of Beauty appeared first on Cystic Fibrosis News Today. Read More Tobramycin Fights P. aeruginosa Bacteria That Impair CFTR Function, Study Says Feb 12, 2019 07:00 am | Patricia Inacio, PhD Tobramycin, an antibiotic commonly used against Pseudomonas aeruginosa bacteria, reduces the bacteria’s load of virulence factors that impair the function of the CFTR (cystic fibrosis transmembrane conductance regulator) protein, a new study shows. The study, “Tobramycin reduces key virulence determinants in the proteome of Pseudomonas aeruginosa outer membrane vesicles,” was published in the journal PLOS One. Lung infection by P. […] The post Tobramycin Fights P. aeruginosa Bacteria That Impair CFTR Function, Study Saysappeared first on Cystic Fibrosis News Today. Read More It’s Hard to Be Graceful While Becoming Disabled Feb 11, 2019 03:00 pm | Wendy Caroline Growing up with a terminal disease, it was not a secret that one day I would become disabled. What I didn’t expect was how messy the process would be. There’s no handbook or guide about how to become disabled. It’s not as though one day you wake up and cystic fibrosis doesn’t let you do […] The post It’s Hard to Be Graceful While Becoming Disabled appeared first on Cystic Fibrosis News Today. Read More   Recent News My Family Had 2 Children with CF Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide New company Recida to Focus on Developing Therapies Against Antibiotic-resistant Bacteria CF Family Friday: The Gaudenzi Mother-Daughter Duo Enrollment Info Updated on Phase 3 Trial Assessing AeroVanc for MRSA Infection in CF