Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Evolving Toward Becoming Visible New Gene Therapy Strategy May Reverse Effects of Disease-related Mutations, Study Shows Taking Sick Leave Shouldn’t Cause Low Self-esteem NIH Funds Fight Against CF-associated Antibiotic Resistant Bacteria Evolving Toward Becoming Visible Feb 22, 2019 09:00 am | Elizabeth Rogers Doctors diagnosed me with cystic fibrosis (CF) at 18 months old and I recently turned 29. It’s safe to say I’ve never known a life without it. Growing up, I became accustomed to treatments and pills, my life punctuated by responsibilities in the midst of childhood fun. Despite all that, I felt very much like […] The post Evolving Toward Becoming Visible appeared first on Cystic Fibrosis News Today. Read More New Gene Therapy Strategy May Reverse Effects of Disease-related Mutations, Study Shows Feb 22, 2019 07:00 am | Alice Melão A new strategy to genetically prevent disease-related mutations from occurring shows the potential to treat several genetic diseases, including cystic fibrosis (CF), a study reports. This newly developed approach uses man-made RNA molecules, called anticodon engineered transfer RNAs or ACE-tRNA, that prevent the detection of abnormal stop signals in a gene’s sequences. This results in […] The post New Gene Therapy Strategy May Reverse Effects of Disease-related Mutations, Study Shows appeared first on Cystic Fibrosis News Today. Read More Taking Sick Leave Shouldn’t Cause Low Self-esteem Feb 21, 2019 09:00 am | Elly Aylwin-Foster During these last two weeks, I’ve felt the sickest I have in years. I was admitted into the hospital for a bronchoscopy, intravenous antibiotics, and continuous aminophylline infusion to counteract chest tightness. Amid the nausea, sweats, sleeplessness, pain, bruised veins from botched access attempts, and retching from coughing fits, one symptom was blessedly absent: guilt over […] The post Taking Sick Leave Shouldn’t Cause Low Self-esteem appeared first on Cystic Fibrosis News Today. Read More NIH Funds Fight Against CF-associated Antibiotic Resistant Bacteria Feb 21, 2019 07:00 am | Santiago Gisler Researchers at Case Western Reserve University School of Medicine have received a $3.34 million grant from the National Institutes of Health (NIH) to develop a new strategy to sensitize Burkholderia multivorans — a common pathogen in patients with lung diseases like cystic fibrosis (CF) — to the action of antibiotics. Colonization by the opportunistic bacterium Burkholderia multivorans […] The post NIH Funds Fight Against CF-associated Antibiotic Resistant Bacteria appeared first on Cystic Fibrosis News Today. Read More   Recent News Vienna to Host RARE2019 Meeting on Rare Diseases Increased Pulmonary Flares and IgG Antibody Levels Elevate Risk of Joint Disease in CF, Study Says Brad Dell: The Man Without Fear, Almost Hyperbaric Oxygen Treatment May Make Antiobiotics More Effective Against P. aeruginosa Infections, Study Says CF Forces Me to Have a Different Long-term Outlook