Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: CF Science Is Unexpectedly Beautiful WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April S. maltophilia Infection Does Not Raise Risk of CF-related Diabetes, Study Says CF Science Is Unexpectedly Beautiful Feb 25, 2019 09:00 am | Tré LaRosa During my sophomore year of college, the background on my computer screen was a cystic fibrosis transmembrane conductance regulator (CFTR) protein, specifically a visualization of its quaternary structure. It looked something like this image. The simplified graphic isn’t an exact representation of what the CFTR protein looks like in the body. The structure is composed […] The post CF Science Is Unexpectedly Beautiful appeared first on Cystic Fibrosis News Today. Read More WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April Feb 25, 2019 07:30 am | Larry Luxner The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government officials is planned for April 10–12 in a Washington, D.C., suburb. Some 1,200 people have already registered to attend the World Orphan Drug Congress (WODC) USA 2019, set to take place at the Gaylord National Harbor Hotel in Oxon Hill, Maryland. About […] The post WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in Aprilappeared first on Cystic Fibrosis News Today. Read More S. maltophilia Infection Does Not Raise Risk of CF-related Diabetes, Study Says Feb 25, 2019 07:00 am | Joana Carvalho Despite being commonly found in patients with cystic fibrosis-related diabetes, the bacteria Stenotrophomonas maltophilia cannot be considered as an independent risk factor for developing CFRD, study says. The study, “Cystic fibrosis related diabetes is not independently associated with increased Stenotrophomonas maltophilia infection: Longitudinal data from the UK CF Registry,” was published in the Journal of Cystic […] The post S. maltophilia Infection Does Not Raise Risk of CF-related Diabetes, Study Saysappeared first on Cystic Fibrosis News Today. Read More   Recent News Evolving Toward Becoming Visible New Gene Therapy Strategy May Reverse Effects of Disease-related Mutations, Study Shows Taking Sick Leave Shouldn’t Cause Low Self-esteem NIH Funds Fight Against CF-associated Antibiotic Resistant Bacteria Vienna to Host RARE2019 Meeting on Rare Diseases