jueves, 30 de mayo de 2019

Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases | Home page



New Articles For BioMed Central:

Orphanet Journal of Rare Diseases

The following new articles have just been published in Orphanet Journal of Rare Diseases

RESEARCH

The role of patient organizations in the rare disease ecosystem in India: an interview based study

Mohua Chakraborty Choudhury and Gayatri Saberwal
Orphanet Journal of Rare Diseases 2019, 14:117 | Published on: 29 May 2019

RESEARCH

Recommendations for the management of MPS VI: systematic evidence- and consensus-based guidance

Mehmet Umut Akyol, Tord D. Alden, Hernan Amartino, Jane Ashworth, Kumar Belani, Kenneth I. Berger, Andrea Borgo, Elizabeth Braunlin, Yoshikatsu Eto, Jeffrey I. Gold, Andrea Jester, Simon A. Jones, Cengiz Karsli, William Mackenzie, Diane Ruschel Marinho, Andrew McFadyen…
Orphanet Journal of Rare Diseases 2019, 14:118 | Published on: 29 May 2019

RESEARCH

Research activity and capability in the European reference network MetabERN

Jean-Michel Heard, Cinzia Bellettato, Corine van Lingen and Maurizio Scarpa
Orphanet Journal of Rare Diseases 2019, 14:119 | Published on: 29 May 2019

Follow BMC on:Twitter IconFacebook IconYouTube IconLinkedIn Icon

For further information or enquiries please use our contact page details.
BMC respects your privacy and does not disclose, sell or rent your personal information to any non-affliated third parties with your consent. Privacy policy.
BioMed Central Ltd
The Campus, 4 Crinan Street,
London, N1 9XW,
United Kingdom
Springer Nature logo
© 2019 BioMed Central Limited unless otherwise stated. Part of Springer Nature.

No hay comentarios:

Publicar un comentario