Cystic Fibrosis Weekly Update

Contents:

Vertex and Republic of Ireland Reach Agreement on Reimbursement for Triple Combination Therapy
Here’s How I’m Failing to Support the Mental Health Community
CF Newborn Screening Improves Weight and Lung Outcomes, but Has No Impact on Social Inequalities, Study Suggests
Diet to Help Manage Glucose in CF Patients: A Nutritionist’s View

Vertex and Republic of Ireland Reach Agreement on Reimbursement for Triple Combination Therapy

Dec 18, 2019 07:00 am | Iqra Mumal MSc

Patients with cystic fibrosis (CF) in the Republic of Ireland will be among the first in Europe to benefit from Vertex Pharmaceuticals’ triple combination regimen composed of elexacaftor (VX-445), tezacaftor, and Kalydeco (ivacaftor), upon its approval by the European Medicines Agency. Following Vertex’s negotiations with the Republic of Ireland’s Health Service Executive, the company’s triple combination regimen has been added […]
The post Vertex and Republic of Ireland Reach Agreement on Reimbursement for Triple Combination Therapy appeared first on Cystic Fibrosis News Today.

Here’s How I’m Failing to Support the Mental Health Community

Dec 17, 2019 03:00 pm | Bailey Vincent

What’s inside me is more than just bones. It’s more than machinery invading foreign lands. Or darkness where organs used to be. Or wrongs and rights to chart and X-ray until I’m nothing more than gray matter with no name. Recently, one of my digital cystic fibrosis (CF) friends sought treatment for her mental health […]
The post Here’s How I’m Failing to Support the Mental Health Community appeared first on Cystic Fibrosis News Today.

CF Newborn Screening Improves Weight and Lung Outcomes, but Has No Impact on Social Inequalities, Study Suggests

Dec 17, 2019 07:00 am | Patricia Inacio, PhD

Babies diagnosed with cystic fibrosis (CF) through newborn bloodspot screening show better lung function, can better stave off infection with Pseudomonas aeruginosa (the most common bacteria found in CF), and have better weight outcomes than those diagnosed clinically later in life, a large CF registry-based study from the United Kingdom shows. However, newborn screening had […]
The post CF Newborn Screening Improves Weight and Lung Outcomes, but Has No Impact on Social Inequalities, Study Suggests appeared first on Cystic Fibrosis News Today.

Diet to Help Manage Glucose in CF Patients: A Nutritionist’s View

Dec 16, 2019 09:46 am | Alana Kessler

It is well documented that patients with cystic fibrosis (CF) are a vulnerable population as far as nutrition is concerned. Daily energy needs for CF patients are typically one to one and a half times higher than for healthy individuals, mainly because of the demands of day-to-day organ system homeostasis — the ability of organs to […]
The post Diet to Help Manage Glucose in CF Patients: A Nutritionist’s View appeared first on Cystic Fibrosis News Today.