Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: CF Forces Me to Have a Different Long-term Outlook Vertex Plans to Ask for Extended Approval of Symkevi in Europe for CF Children Ages 6-11 CF Forces Me to Have a Different Long-term Outlook Feb 18, 2019 09:00 am | Tré LaRosa In high school, I aspired to be a pulmonologist for obvious reasons: I wanted to aid the CF community by directly helping patients. It seemed logical. I dreamed of becoming a pulmonologist because my CF doctors had been some of my greatest role models. They were quite literally keeping me alive and I was immensely […] The post CF Forces Me to Have a Different Long-term Outlook appeared first on Cystic Fibrosis News Today. Read More Vertex Plans to Ask for Extended Approval of Symkevi in Europe for CF Children Ages 6-11 Feb 18, 2019 07:00 am | Alice Melão Results from a Phase 3 trial demonstrate that Symkevi (tezacaftor and ivacaftor combo), known as Symdeko in the U.S., is safe and can effectively improve lung clearance in children, from 6 to 11 years old, with cystic fibrosis (CF). With these results, Vertex Pharmaceuticals — the company responsible for Symdeko/Symkevi development and marketing — is planning […] The post Vertex Plans to Ask for Extended Approval of Symkevi in Europe for CF Children Ages 6-11 appeared first on Cystic Fibrosis News Today. Read More   Recent News CFF Plans Feb. 28 ‘ResearchCon’ Virtual Event for Cystic Fibrosis Patients Cisco and Emily’s Hope Raise Over $1 Million in CFF’s Great Strides Campaign Sharing Life with CF on Social Media An Open Letter to the ‘How Are You Feeling?’ Folks ‘Five Feet Apart,’ Film About Teens with CF and Young Love, Teams Up with Fashion Retailer rue21