Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Vienna to Host RARE2019 Meeting on Rare Diseases Increased Pulmonary Flares and IgG Antibody Levels Elevate Risk of Joint Disease in CF, Study Says Brad Dell: The Man Without Fear, Almost Hyperbaric Oxygen Treatment May Make Antiobiotics More Effective Against P. aeruginosa Infections, Study Says Vienna to Host RARE2019 Meeting on Rare Diseases Feb 20, 2019 09:00 am | Larry Luxner About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city early next month for the 2nd International Congress on Advanced Treatments in Rare Diseases. The March 4-5 meeting, to take place at the Hilton Am Stadtpark Vienna, features 27 speakers on a variety of disorders ranging from spinal muscular atrophy (SMA) to […] The post Vienna to Host RARE2019 Meeting on Rare Diseases appeared first on Cystic Fibrosis News Today. Read More Increased Pulmonary Flares and IgG Antibody Levels Elevate Risk of Joint Disease in CF, Study Says Feb 20, 2019 07:00 am | Ana Pena Joint disease, or arthropathy, is common among people with cystic fibrosis (CF), and more likely to occur in older and female patients, and those who have more pulmonary flares or elevated blood levels of IgG antibodies, a study suggests. The higher number of flares and increased antibody concentration may reflect a state of chronic inflammation […] The post Increased Pulmonary Flares and IgG Antibody Levels Elevate Risk of Joint Disease in CF, Study Says appeared first on Cystic Fibrosis News Today. Read More Brad Dell: The Man Without Fear, Almost Feb 19, 2019 09:00 am | Brad Dell Imagine how much easier cystic fibrosis (CF) would be if we didn’t have fears. What if we stared death in the eye and laughed? Age 23 was destined to be my last year on earth. Hospital staff had that awkward talk with my family and girlfriend about my imminent death, but without actually saying that […] The post Brad Dell: The Man Without Fear, Almost appeared first on Cystic Fibrosis News Today. Read More Hyperbaric Oxygen Treatment May Make Antiobiotics More Effective Against P. aeruginosa Infections, Study Says Feb 19, 2019 07:00 am | Santiago Gisler Exposing cystic fibrosis (CF) patients to high levels of oxygen through hyperbaric oxygen treatment may make Pseudomonas aeruginosa bacterial aggregates more sensitive to antibiotics like tobramycin and easier to eradicate from the lungs, a study in patient-derived bacterial cultures reports. The study, “Hyperbaric oxygen treatment increases killing of aggregating Pseudomonas aeruginosa isolates from cystic fibrosis patients,” was published in the Journal […] The post Hyperbaric Oxygen Treatment May Make Antiobiotics More Effective Against P. aeruginosa Infections, Study Says appeared first on Cystic Fibrosis News Today. Read More   Recent News CF Forces Me to Have a Different Long-term Outlook Vertex Plans to Ask for Extended Approval of Symkevi in Europe for CF Children Ages 6-11 CFF Plans Feb. 28 ‘ResearchCon’ Virtual Event for Cystic Fibrosis Patients Cisco and Emily’s Hope Raise Over $1 Million in CFF’s Great Strides Campaign Sharing Life with CF on Social Media