Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: There Are Many Ways to Participate in Cystic Fibrosis Awareness Month Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns A Healthy Ambition: Leadership with Illness Bike Rides, Walkathons, Other Fundraising Events Mark CF Awareness Month Poor Oxygen Conditions May Promote P. aeruginosa Infection Over Other Pathogen in CF, Study Suggests There Are Many Ways to Participate in Cystic Fibrosis Awareness Month May 17, 2019 09:00 am | Elizabeth Rogers The month of May rolls around and I find myself trying to take the perfect selfie. I want to capture not only my face, but also my percussive Vest device and my nebulizer. But getting it all into one shot is tricky; at some angles, I don’t like the way my chin or the imperfections […] The post There Are Many Ways to Participate in Cystic Fibrosis Awareness Month appeared first on Cystic Fibrosis News Today. Read More Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns May 17, 2019 07:00 am | Larry Luxner With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose rare diseases have already been diagnosed. That’s the warning from Christopher P. Austin, MD, director of the National Center for Advancing Translational Studies(NCATS) at the U.S. National Institutes of Health. “We […] The post Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns appeared first on Cystic Fibrosis News Today. Read More A Healthy Ambition: Leadership with Illness May 16, 2019 09:00 am | Elly Aylwin-Foster In my journey to make sense of the world of work while having a life-limiting illness, I have often wondered, “What does it look like to be a leader with CF?” To help answer that question, I spoke to Rob Bates, a creative director from London. He works four days a week at FutureGov, a […] The post A Healthy Ambition: Leadership with Illness appeared first on Cystic Fibrosis News Today. Read More Bike Rides, Walkathons, Other Fundraising Events Mark CF Awareness Month May 16, 2019 07:30 am | Larry Luxner When it comes to disease “awareness” days, weeks, and months, 2019 is crammed with hundreds of them. May leads the calendar with 37 such designations, calling attention to everything from stuttering and scleroderma to high blood pressure, lupus and skin cancer. Cystic Fibrosis Awareness Month also occurs in May. It’s observed nationwide with bike rides, walkathons, […] The post Bike Rides, Walkathons, Other Fundraising Events Mark CF Awareness Monthappeared first on Cystic Fibrosis News Today. Read More Poor Oxygen Conditions May Promote P. aeruginosa Infection Over Other Pathogen in CF, Study Suggests May 16, 2019 07:00 am | Patricia Inacio, PhD Poor oxygen conditions, a common trait in the lungs of cystic fibrosis (CF) patients, may help Pseudomonas aeruginosa bacteria outcompete other infectious agents, namely Staphylococcus aureus, a study suggests. The study, “Anaerobiosis influences virulence properties of Pseudomonas aeruginosa cystic fibrosis isolates and the interaction with Staphylococcus aureus,” was published in the journal Nature Scientific Reports. Opportunistic […] The post Poor Oxygen Conditions May Promote P. aeruginosa Infection Over Other Pathogen in CF, Study Suggests appeared first on Cystic Fibrosis News Today. Read More   Recent News Early, Rapid BMI Increase May Affect Overall Growth of CF Children, Study Suggests In Cystic Fibrosis Awareness Month, I Look Back to Anticipate the Future Phages, Viruses that Attack Bacteria, Are a Potential Therapy Against Infections, Case Report Suggests Trial of Nebulized CF Candidate Therapy Completes Single-ascending Dosing Being Sick Is Making Me Crazy (But Don’t Tell Anyone)