martes, 7 de mayo de 2019

Cystic Fibrosis News Today Weekly Digest


Cystic Fibrosis Weekly Update

Contents:

How to Love Your Body, Even If It’s Genetically Abnormal

May 06, 2019 09:00 am | Tré LaRosa



cellsWhen we say “me” or “I,” what exactly are we referring to? Are we referring to our bodies, our minds, or the combination of the two? It’s both a scientific and philosophical question, who we are. In a casual manner, we often speak in the first person when referring to the being that is both […]
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Researcher Will Use $3.3M NIH Grant to Develop ‘One-Size-Fits-All’ Inhaled Therapy

May 06, 2019 07:00 am | Ana Pena



NIH grant CF treatmentA pharmaceutical sciences researcher will use a five-year, $3.3 million grant from the National Institutes of Health (NIH) to develop an inhaled therapy for use by all cystic fibrosis (CF) patients, regardless of the genetic mutation underlying their disease. Researcher Gaurav Sahay, PhD, of Oregon State University (OSU), plans to create a “one-size-fits-all” treatment based on inhalable […]
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Help! I’m Haunted by Old Photos of My Health

May 03, 2019 03:00 pm | Bailey Vincent



old photos, social mediaThe worst thing about being a writer is being unable to escape old drafts of yourself. Would you believe that the photos you see here were taken on the same day? (See also the Facetune skills, circa 2015, that have since been forgotten.) The one on the left was, weirdly, widely publicized at the time. […]
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Recent News

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Not All Work Is Paid: Reflections on Self-value with CF
FDA Approves Kalydeco for Treatment of 6- to 12-month-old Infants with Cystic Fibrosis
PALS Uplifts the Spirits of Rare-Disease Patients by Offering Free Flights

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