MAY NEWSLETTER

Data DIY - Watch & Interact from Anywhere
Data DIY kicks off tomorrow at 9 AM PT. Stream the workshop and engage with our expert speakers. Post your questions now, before the session starts or live using our Global Genes Question Wall.

RARE Drug Development Symposium

There’s still time to register. Don’t miss the National Center for Advancing Translational Sciences program director, PJ Brooks, as he discusses how rare genetic insights can expand research. Register

Dash for Rare
Cheer on our team this weekend! As a SDCCU Charity Partner for the OC Marathon, we’re running to raise awareness for rare disease. Help Us Reach Our Goal

Tune in
See what RARE on the Road is all about! Follow along on Saturday as our Instagram account is taken over by rare disease advocate Leah Trotter at RARE on the Road Birmingham.

RARE Patient Advocacy Summit
Join our growing list of attendees and chart your course. Register today before early bird registration ends May 15th.

RARE Compassion Project
The RARE Compassion Project changes lives. We’re looking for rare disease patients and families interested in the matching program. Help Bridge Healthcare and Rare Disease

Community Spotlight
Runner, advocate, storyteller. Abbey Hauser runs to inspire, advocates to make change and helps others share their stories. Read More