Topics in the CF News Today Forum That You Might Have Missed

Cystic Fibrosis News Today Weekly Forum Digest Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed! New to our forums? Register here.   Brandon May 13, 2019 11:21 am | Luisa Palazola Replies: 0 It’s MCM and we’re stoked to have Brandon today. @ is 30 years old and lives in Arizona. Here are three things important to HIS story with CF. Don’t forget to answer his question! I was born in Frankfurt, Germany, but I I was raised in Iowa my whole life. I was diagnosed with cystic fibrosis around 1 year of age. I keep healthy through daily nebulizers, a healthy diet and nutrition, and strength training. I’m Christian and pray for manifestation in God’s healing, always. My parents were told I wouldn’t make it past my teens, and I was told I wouldn’t make it past 24. Today I’m 30 years old and still going strong, Thanks be to God. What I want people to know most about CF is that it shouldn’t define a person. I am not my life situation and there’s is much more to me than an illness that no one choose. I aim to bless others while going through this storm we are call CF. My lifetime goal is selfless acts of character and to encourage everyone else in their own Godly creation. I pray people will know their worth, not by the eyes of people as their views are imperfect, but by their own worth in Jesus in which they are beautifully, magnificently, and fiercely made. I’m passionate about bringing joy to those around me even if it means making a fool of myself. A smile beats a thousand grins. Though I have dealt with CF my whole life, it doesn’t stop or limit me from my dreams. I like to hike and be outdoors, go camping, biking, surfing, guitar playing, gun shooting, and van life enthusiast. My heart is for people. To guide, empower, encourage, to lift, and to conquer. If you want to go fast, go alone. If you want to go far, go together. I welcome anyone to message and or follow me. Lets talk, lets laugh, lets cry… as long as it’s together  My question to the community is: If money was no object, and dreams reachable no matter the physics – where and what would you be? Read More NFL’s Boomer Esiason to Speak at National Association of Specialty Pharmacy’s AGM May 10, 2019 01:04 am | Cystic Fibrosis News Moderator Replies: 0 Former NFL quarterback Boomer Esiason, whose son has cystic fibrosis, will speak at the National Association of Specialty Pharmacy’s annual meeting. Learn more about the event and Boomer’s story here. Are you a Boomer Esiason fan? Read More How to Start a Business When You Have Cystic Fibrosis May 10, 2019 01:03 am | Cystic Fibrosis News Moderator Replies: 0 In this column, Elly Aylwin-Foster explores the benefits, risks, and challenges of self-employment alongside life with cystic fibrosis. Click here to read more from Elly. Have you ever considered self-employment? If you are currently self-employed, do you enjoy it more than working for someone else? Read More P. aeruginosa Variants Contribute to CF Lung Inflammation May 10, 2019 01:02 am | Cystic Fibrosis News Moderator Replies: 0 Click here to read about how variants of P. aeruginosa different can contribute to the inflammaotry process in the lungs of patients with cystic fibrosis. What do you think of this news? Read More Interactions Between CF-associated Bacteria and Fungi Impact Each Other’s Growth May 09, 2019 11:46 am | Anonymous Replies: 1 Physical and signaling interactions between cystic fibrosis pathogens Pseudomonas aeruginosa and Scedosporium fungi affect their growth, a study says. Read more about this relationship here. What do you think of this news? Read More Vertex and Treating CF: 3 Disease-modifying Therapies Make Leap from Lab to Patients May 09, 2019 07:25 am | Cystic Fibrosis News Moderator Replies: 0 Click here to read the second of a four-part series about Vertex, in which we detail the work that led to the clinical testing and approval of Kalydeco, Orkambi, and Symdeko for cystic fibrosis. Have you found this series interesting to read? Read More Motif Bio, Lamellar to Test New Therapeutic Combo for CF Lung Infections May 09, 2019 07:23 am | Cystic Fibrosis News Moderator Replies: 0 Click here to read about the collaboration between Motif Bio and Lamellar Biomedical to test a new therapeutic combination for treating lung infections in people with cystic fibrosis. What do you think of this news? Read More How to Love Your Body, Even If It’s Genetically Abnormal May 09, 2019 07:20 am | Cystic Fibrosis News Moderator Replies: 0 The cells in Tré LaRosa’s body that have dysfunctional CFTR function also fight bacteria and viruses. Knowing this has given Tré a new appreciation for his body. Click here to find out what that is. How do you feel about your own body? Read More Decreasing Acidity in Airway Liquid Could Lower Infection Risk in Newborns with CF May 09, 2019 02:02 am | Cystic Fibrosis News Moderator Replies: 0 Increasing the acidity of the airway surface liquid of newborn CF patients might make them more resistant to bacterial infections, a study found. Read more about this news here. What do you think of this study and its findings? Read More What is Emily’s Entourage? May 09, 2019 02:01 am | Cystic Fibrosis News Moderator Replies: 0 Click here to learn more about about the 4th Annual Emily’s Entourage fundraiser, which raises money for causes related to cystic fibrosis. Are you familiar with Emily’s Entourage? Have you ever attended this event or would you like to? Read More